I had written posts for Tuesday and Wednesday, which was Nora’s official birthday. But since then I received the very sad news that little Rosalie who I had requested prayer for on the Praying for Nora FB page has gone on to heaven yesterday (April 17th) just 4 hours after she was born. Like Nora, Rosalie was diagnosed with Trisomy 18 while she was still in her Mommy’s, Krystal’s womb. Despite the laundry list of very frightening statistics, Rosalie’s parents also made the decision to carry her to term, and to put their trust in God. Reading the words of Krystal’s blog are almost a direct parallel of my own thoughts and emotions that I was experiencing exactly a year prior. As fate would have it, Nora Rose and Rosalie would come to share the same birthday. Fervent prayers for strength and peace for this sweet family were amalgamated with my rejoicing over my own sweet baby’s one year birthday. I wanted so badly to hear that Rosalie made it and felt that maybe if we hoped and prayed, wished and pleaded hard enough that God would answer that prayer for them too. I was sitting outside watching Gavin play basketball this evening when I got the news in an email from Krystal that Rosalie had gone on to heaven. I sat there numb with sadness staring up at the three birds who happened across the sky. “How is it that I got to bring home a baby, and other families don’t?” I wondered aloud. In that moment I remembered a correspondence I’d shared with another Mommy of an Angel. In her email to me she had pitched the same question. Through the loss of her own baby girl (also named Nora Rose!) Alison pointed out to me that God tailors each experience and each outcome lovingly and specifically for each person. She is able to see now that God was saving her from the hurt and worry that I deal with regularly in regard to my Nora’s health. It is just differently distributed afflictions of heartache, differently distributed opportunities to draw closer to God. Because we are all unique individuals, we are given unique individual experiences. There are no cookie cutter prayers to be said, and no cookie cutter answers to be given. Only God knows what is best for us, even though we think we have it all figured out for ourselves. Alison’s Nora and now little Rosalie won’t get to be raised by their parents here on this earth — but PRAYERS WERE STILL ANSWERED. That might not feel so obvious to Rosalie’s family right now in the fresh anguish of their loss, but through their unwavering trust and faith in God it will.

A wise woman once said back in January, “Every day from here on can be hard if we let it. But I’m learning to trust in Him, that he will direct my life, my circumstances, my day to day. He is capable. And He is more than capable of caring for my Rosie whether it’s watching her grow here with us or holding her in His arms in Heaven.”

We’re all praying for you Krystal, Chris and family!


Don’t be afraid, for I am with you. Don’t be discouraged, for I am your God. I will strengthen you and help you. I will hold you up with my victorious right hand.
(Isaiah 41:10 NLT)





“Oh, hi! I’m worried that my hair might be a little fuzzy this morning. Maybe I’ll order up a baff.”

“I could sure use a wash and a rinse…”

“Maybe get my nails did up?”


“That looks like a fun time!”

“Hey! Did you hear about these piggies? It says here they got woken up. They were in the hay it says.”

BIRTHDAY Wednesday

Incase you haven’t seen it on the Praying for Nora FB page, here is the video I created in celebration of Nora’s birth.

Go, go, go, go, go, go
Go Nora, it’s your birthday
We gonna party like its your birthday
We gon’ sip milkies like its your birthday,
And you know we might have some cake, it’s your birthday!

“You can find me in the tub, bottle full o milks…”
Nora and I had a sweet day together just she and I after Daddy and the big kids left for work and school. After her birthday baff we had a few special visitors and then we played in her new rocker chair.

“Well now dis is kinda interesting!!”

Then we went on a short walk to the mailbox before heading right back home because someone got upset about it all. (I won’t name any names…)

This same certain little somebody did, however, enjoy sitting out on the deck for over an hour.

It was so CUTE watching her little wisps blow in the warm breeze.

She was very amused by the wicker pattern of the bench we were lounging on!

“Dis is kinda funny!”

After dinner we sang Happy Birthday to little Nornor. She would have preferred that we sang the song at least 20 more times.

(whispering) “I get deez people to do whatever I want just with a couple of fusses and some super-extra cuteness. Haha!”

For we are God’s masterpiece. He has created us anew in Christ Jesus, so we can do the good things he planned for us long ago.
(Ephesians 2:10 NLT)





Whatever is good and perfect comes down to us from God our Father, who created all the lights in the heavens. He never changes or casts a shifting shadow.
(James 1:17 NLT)

Sunday and Monday


We took a drive back over to Nana and Papa’s (over the river and through the woods) to get some things we couldn’t fit in the car from the party!



Later that evening William and Greta went down to William’s office to take care of a few things and to check on a job site.

Here is little tiny Greta standing next to the monstrous base of the Horseshoe Casino sign – job in progress!


As it just so happens there was a couple walking past at that very moment — no one else in sight. Unfortunately I wasn’t there, but as it was explained to me, the two walked past and then turned back around. William was prepared to answer a question about the sign but instead the woman introduced herself as Brittany N. and told William she follows the blog. She went to grade school with my little sister Emily. Another “chance” encounter in this great big world that proved to be an equally great big blessing to William and to Greta too. Thank you, Brittany for stopping to say hello and for following along with us on this beautiful journey!


Another day that I’d love to be able to rewind and “fix” not so much for myself but for those killed, injured and affected in Boston. As one of my favorite people pointed out this morning –God gave us free will. That means ALL of us. Not just the good people. When these random acts of violence are committed it grieves God. He is right there crying and hurting with us. He is right there wanting to rescue us and heal our wounds.

There is such a fog of evil that has settled over the earth. So many people are blinded and deceived by its cunning lies, assuming this is just the way of the world. People are destroying themselves and others because they believe in these LIES!!

Be still before the Lord and wait patiently for him; do not fret when people succeed in their ways, when they carry out their wicked schemes. Refrain from anger and turn from wrath; do not fret—it leads only to evil. For those who are evil will be destroyed, but those who hope in the Lord will inherit the land.
(Psalm 37:7-9 NIV)

It’s hard not to stay glued to the media, but when I keep seeing the same horrific imagery over and over and over again and the focus is on sensational terror I find myself getting fearful, anxious, depressed, and vengeful. Amidst this abomination against mankind there are the people who, with their free will, chose to be heroes. That’s where I want my focus to lie on.

Finally, brothers and sisters, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable–if anything is excellent or praiseworthy–think about such things.
(Phillipians 4:8)

People have opened their homes to complete strangers who don’t have a place to stay. They are providing meals, donating blood, what ever it takes to lighten someone else’s heavy burden. I think that is excellent and praiseworthy.

In these sad times, I feel so blessed to be able to stare into these beautiful, innocent little eyes who expect and know nothing but love. How lucky she is!


20130416-185651.jpg“Looks like it’s time for milkies!”

20130416-185714.jpg“Yep! I was right!”

20130416-185636.jpg“Little mid-morning siesta…”

20130416-185721.jpg“Oh, and would you look at that… It’s baff time already!”


20130416-185744.jpg“More sleeps, please!”




Birthday Celebrations

What a sweet, sweet gorgeous day spent celebrating Miss Nora!





Nora and Oma got some cuddle time in.


I mentioned in the previous post – we will plan a party on a larger scale at a later date. Nora can’t wait to meet those of you who will be able to make it!


We sang “Happy Birthday” to her three times! She started fussing after the first round was over so we started up again… and then again. She loves being sung to!


Nora tasted a little bit of icing with “Uncle” Jay. She’s VERY intolerant of anything with texture so we had to be careful not to activate her gag reflex! Speech therapist is coming next week to help us work with that. Little Miss can’t just drink milkies forever!!


“This hat is kinda neat! I kinda like it!”


As we were singing to Nora this afternoon I was remembering another beautiful cake (created by the same super talented baker) that was cut in that very same room. The other cake was the gender reveal cake. By slicing into that cake, the pink inside revealed to us that I was carrying a baby girl. (You can see a video of it on Day 29) This was the day we gave her her name Nora Rose. At that point we were so uncertain and so sad at the thought of losing our baby. The statistics were terrifying. What a stark contrast the moods of these two occasions. If only I could have seen then what we have now! All praise, glory and honor to our Lord Jesus Christ!!! 🙂 🙂 🙂

We’ve had a busy weekend and were able to get out to do some fun things with the big kids. Friday afternoon I took the big kids out for lunch to Skyline and then on some errands with me. We laughed like heck at the “Goose Parking Only”


While we were in Kohl’s waiting to return a pair of shoes, Greta found a bow in her pocket. We dared Gavin to wear it in his hair which he did obligingly!


That evening we took them roller skating. Greta is getting pretty good on wheels! Gavin preferred watching or playing in the arcade.




It was HILARIOUS watching William act like he was out of control and about to fall all over the place. (At least I THINK he was acting? Hmmm?) I don’t know what was funnier–him or the people’s look of dismay/concern watching him.




After looking at the way things are on this earth, here’s what I’ve decided is the best way to live: Take care of yourself, have a good time, and make the most of whatever job you have for as long as God gives you life. And that’s about it. That’s the human lot. Yes, we should make the most of what God gives, both the bounty and the capacity to enjoy it, accepting what’s given and delighting in the work. It’s God’s gift! God deals out joy in the present, the now. It’s useless to brood over how long we might live. (Ecclesiastes 5:18-20 MSG)

Cardiology Appointment

Nora’s cardiology appointment went exceptionally well yesterday morning! She only had to have a quick EKG and exam. Dr H said he is very pleased with her numbers and overall appearance. There really is no telling what caused that hiccup in her heart rate. Incase it WAS the Synagis shot, I’m relieved that was the last one for this season. Definitely something to keep a close eye on if she has to get them next year!



Nora is 15 lbs. and 14 oz. and 26 inches long! She is getting sooo big, so fast! The fact that she’s eating and gaining so well is very encouraging!

We were so excited to see Linda M on a chance meeting in the hall on our way out. She is our “Angel on Earth” who has a way of always showing up in the right place at the right time! How sweet it was to be able to return that favor to her!! You made our day too, Linda! We’re so glad you’re back!

Nora was glad to be back for baff time!





It’s good morning time!!!

Greta spent the night at our friends’ house, so it was just Gavin, Nora and I after William left for work. (The big kids are on spring break this week.) When Nornor’s nurse got here Gavin and I went out in search of an adventure.


First stop: shore of the Ohio River in Petersburg. Lots of rocks and sticks were thrown. Gavin has been an avid rock thrower since he was a very little guy!

From there we went to lunch, then back home. We peeked in on Nornor before heading down to the creek in our backyard for adventure part 2.




I love being able to spend one on one time with my kids!

Back home again that evening there was a really cute, sweaty baby girl who was requesting a baff. It got pretty warm in our house for a couple of days which made for a sticky, hot, sweaty baby. She really seemed to like the cooler temperature of the water that we opted for! I foresee a little kiddie pool in our near future!



“It’s kind of fun having my brudder an sister home like this! I love them soooooo much!”
“Arrrrrrrrrr, me mateys!”
“Look at me in my big girl stroller! Going for walks makes me hungry!”
“Nom Nom Nom Nom Nom.”

In a nutshell (or a lengthy blog post, as the case may be) all is well. God never ceases to amaze me, proving to me over and over and over and over again that He has complete control over this. Can you even believe that Nora is going to be ONE YEAR OLD next Wednesday?? We never dared to dream that we would see this day.

Nora trying on her birthday dress:

I had planned on announcing an Open House type of party to give all of you the opportunity to meet Nora. However, in light of everything that has happened lately we are going to have a smaller scale celebration. I promise we will have a day to meet Nora in the summer! 🙂

“I knew you before I formed you in your mother’s womb. Before you were born I set you apart and appointed you as my prophet to the nations.”
(Jeremiah 1:5 NLT)

That verse gives me the chills every time I read it!!!!!!!

In His Grip

It was early summer of 2003. I was pregnant with Gavin as I walked into Drug Emporium for miscellaneous odds and ends. As I walked in I noticed a bird flying around inside of the store. An employee saw me watching the bird and commented that they’d been trying to get it out all morning and afternoon. With bold confidence I informed her that I’d get it out for them and then started off in the direction of the bird. I have a very soft spot in my heart for birds and will go to great lengths to help them. The young girl looked at me like I was crazy and continued on her way probably thinking, “Whatevs, lady…” The bird landed on top of a glass cigarette case that was about 7 feet high. Not like I could just reach up and grab a wild bird even if I could reach up that high.

“GOD, PLEASE HELP ME GET THIS BIRD!!” I quietly whispered.

I was SURE that I was going to get this bird without any doubt in my mind. I just had no idea how to go about it. I’m not in the habit of carrying around pole nets in my purse. As I got closer to the glass case I raised my arms up at the bird. I must have scared it because it fluttered back and was now stuck between the wall and the case. As if I knew exactly what I was doing, I reached back and was able to grab just the edge of the young starling’s wing. The frightened bird struggled and resisted against me, but I refused to let go. Ever so gently I pulled the bird out from his predicament by his wing careful not to bend it in a direction it wasn’t meant to go. In less than a couple of minutes I had the starling in my hands, his head peeking out of my firm grasp with juvenile fuzz still on the top of his head. Largely pregnant, I walked past the checkout registers with a fuzzy headed bird in my hand. Several employees and customers stared at me dumbfounded wondering how in the heck I managed to do in literally a couple of minutes what they’d been trying to do all day!

Once back outside I released the bird from my grip and it instantly took flight. It landed on a nearby wall and looked back at me as if to say thank you before taking off into the horizon.

Initially I recalled this event from the perspective of approaching matters with bold and confident faith,


Am I SURE that God is going to heal Nora without any doubt in my mind? “Is my faith that strong?” I ask myself. There are days when it seems impossible, “HOW are you going to do this?” Hopelessly, I try to find the logic and potential resources just as I did with the starling. Often those don’t exist. But that can not and will not stop God! He faithfully provides just the right circumstances, and puts just the right people in our lives with pinpoint precision.

Now faith is being sure of what we hope for and certain of what we do not see.
(Hebrews 11:1)

Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.
(Mark 11:24)

As I recalled this story of the starling I began to see things with a “bird’s eye view”, so to speak. When we first started going to Children’s Hospital, I compared it to feeling like a trapped bird. I think it also holds true in initially finding yourself as the parent of a special needs child. I found myself empathizing with the fear that bird must have been faced with. One “wrong turn”, whether he chose it or not, and suddenly the bird found himself in an environment that was completely foreign to him. The endless sky was suddenly restricting. Flying frantically back and forth, there appeared to be no way out, no solution in sight. He trusted nothing and no one until suddenly he was physically pinned between a wall and a cabinet, his worst fears come true. How exactly like that bird I have felt!! Emotionally crushed. Hopeless and terrified. I sometimes don’t understand the love and wisdom in God’s mighty hand squeezing through the crack to extricate me. Out of fear I try to wriggle from his grasp, wanting to rely on my own solutions for solving these problems. But the more I relax and stop fighting the easier it is. God doesn’t have to pull so hard on my wings. I might spend the rest of my life behind this “cabinet”, but I have the faith and the hope that one day I will finally get out. As long as I am in His grip, I am safe. There will come that day for all of us, whether we were trapped behind a cabinet or not, that we are brought back outside into our natural environment where we were meant to be all along. Those hands will open introducing us to the glories of heaven as we take flight, cool wind in our face, free at last!

Trust in the LORD with all your heart and lean not on your own understanding.
(Proverbs 3:5)

The Lord will rescue me from every evil attack and will bring me safely to his heavenly kingdom. To him be glory for ever and ever. Amen.
(2 Timothy 4:18)


Nora’s heart rate has been registering between mid-130s to 160s and her breathing is much more relaxed!! (As is mine!!) This has been such a relief, such a HUGE answer to prayers!! I can’t thank you enough!!

“Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened.”
(Matthew 7:7-8)

Here is Nora trying out some new toys from Redwood! She was very interested in this mirror. When you touch the little chains that dangle across the mirror the frame lights up, it vibrates and plays music!


Joy vs. Sorrow














It’s been a very surreal week–life unexpectedly interrupted by my uncle’s passing compounded with 2 nights at the hospital with Nornor. A week I won’t soon forget, yet wish I could somehow erase and rewrite. The piercing sorrow and the oppressive anxiety aspire to take center stage with reprehensible audacity. When I avert my gaze to God instead, I am able to see past all that is “wrong” in my human perspective. I begin to notice the graceful glow of beauty and hope.

One of Nora’s nurses wrote a piece about this as it pertains to Nora. She graciously shared it with me and has allowed me to share it here. She wrote this days before the loss of my uncle and Nora’s elevated heart rate / stay in the hospital, but how appropriate now more than ever:

Today’s devotion is taught by Nora Yusko. What an amazing teacher. Last night I had the privilege of spending time with her. She amazed me so. She is so fascinated about everything. She looks at her hands and fingers in awe. She looks at the colors in books and coos with the most innocent sounds of joy. She looks into my face as if to say, “Isn’t this so so wonderful?”

I began to realize how to pray. Lord, please make me more like Nora. She has things in her life, major things, that could have gone better but she does not look at those things. She looks for something, anything around her to enjoy. When you observe her it’s obvious praise and thanksgiving for something. We all have bad things that happened to us….but why do we make that our focus?

It’s what you look at that matters or you would not be looking at it. We have a choice. God said “fix your eyes on these things……..”

I felt Nora would have laughed at my thoughts with a squeal of advice,”silly Tracy, don’t you know the things that you can’t change should not make you miss what you have right now? Look at my hand! Isn’t it amazing?? Praise God……wow… He made this!!”

Lord, I pray that I would look at my grandchildren the way she looks at her hand. That every husband would look at his wife and every wife her husband in the same amazement. That as we read God’s Word we would stop and say, “Wow, He’s amazing!” meditating and staring into the reality of it all.

While I was still meditating about this in my bed this morning I saw Nora in a vision and she had a crown… a jeweled crown in her hand that sparked. Is that where her sparkle comes from? Does she see this now or will she see it one day? Is this why she is so resplendent? I could see her a little bigger, but all Nora as she is in her nature…. throwing that crown and then squealing with a chuckle as it flies into the air. I never saw that scripture in such a content. I always thought we would be so shocked at God’s goodness, not like what I was seeing. She is not shocked or fearful, she is amazed and wants to be herself, as she is right here, right now, this moment just God’s little girl.


Thank you for that, Tracy!

Although tempting, we must not make our focus on all that is wrong. There is so much beauty just waiting to bring joy!

Today I find joy in the FACT that my Uncle has been gloriously received into the Kingdom of God. He left this earth doing what he loved, riding his bike on a beautiful spring afternoon. He will never know another moment of pain, or even the discomforts and restrictions of growing old. I find joy in imagining the blessed reunions that took place once he entered Eternity, and those blessed reunions that will take place for each of us when it is someday our turn. Can you imagine!!??

Today I find joy in Nora’s greatly improved heart rate. It is steadily getting lower and lower. Last check it was in the 140s with O2 sats on the very high 90s. I find joy in her sweet smile and her precious squeals, her huge, mighty purpose.

I give such thanks for each and every instance of joy especially during these trying times.

Rejoice in the Lord always. I will say it again: Rejoice! Let your gentleness be evident to all. The Lord is near. Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.

Finally, brothers, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable if anything is excellent or praiseworthy think about such things. Whatever you have learned or received or heard from me, or seen in me put it into practice. And the God of peace will be with you.
(Phillipians 4:4-9)

Homely Homies!!

“I missed you, sister!!!”

We are home! Nora was discharged from Children’s this morning with a very good report. Her latest echo has showed IMPROVEMENT in the left ventricular function (pause to really let that sink in). I am rendered speechless and amazed, once again, although I’m not sure why. I KNOW the power of our God!!! Nora’s head scan came back normal. All labs came back normal with only her thyroid levels being on the high side of normal. Her heart rate is still elevated into the 170s, but her doctors are confident we will be able to get it back down. As her heart rate is elevated when she is fussy, we are trying to eliminate her causes of fussiness. One of her big complaints is gas pains so we’ve decreased the calories of her milkies from 26 calories to 20 calories (which is the normal calorie) in the hopes that it will be easier to digest. She’s clearly gained enough weight now to where that isn’t so much of an issue anymore. Another fuss buster attempt is decreasing her Sildenefil dosage. One of the common side effects of this medication is headaches! Hopefully these measures will at least keep her heart rate out of the dangerous levels while we figure out how to get it back down to where it was.

“Mmmm. Milkies.”
“Is it time to go home yet?”
“Oh. I guess it’s time for an echocardiogram instead…”
“Oh, hi!”

One of Nora’s friends Robin J suggested the possibility of the recent Synagis shot being the cause of the elevated heart rate. We did mention that to the doctor. He said that certainly could be a possibility and definitely wouldn’t rule that out. Her last dosage was higher than previous instances because of her weight gain! Fortunately that was her last Synagis shot for the season!!

Another friend suggested low iron count as the culprit. We also brought that up but were reassured that her hemoglobin counts were all right where they should be.

Thank you all, so very very much for your prayers, your love and support, texts, voicemails, emails, FB comments and messages. Mom, Dad, Abby, Terri, Amber and everyone who offered to help us through these unplanned past 3 days, THANK YOU!!! YOU ALL ROCK!!!

Gavin and Greta’s message, “We miss you, Nora Rose!” sent from Amber to Mommy’s phone:
Nora’s message she sent back to them:

Before it’s Christmas again, I will go ahead and post pictures from Easter that I’ve been meaning to get up. There is so much I want to say, but if I don’t get some sleep here I won’t be doing me or anyone around me any favors!




The LORD is my light and my salvation whom shall I fear? The LORD is the stronghold of my life of whom shall I be afraid?
(Psalm 27:1)


Tomorrow is going to be an especially hard day for my family as we say goodbye to my Uncle Bill. Please keep us in your prayers, especially my Aunt Margie and Bill’s family and friends. ❤


Whatever you do, do well. For when you go to the grave, there will be no work or planning or knowledge or wisdom. I have observed something else under the sun. The fastest runner doesn’t always win the race, and the strongest warrior doesn’t always win the battle. The wise sometimes go hungry, and the skillful are not necessarily wealthy. And those who are educated don’t always lead successful lives. It is all decided by chance, by being in the right place at the right time. People can never predict when hard times might come. Like fish in a net or birds in a trap, people are caught by sudden tragedy.
(Ecclesiastes 9: 10-12 NLT)