We are home! Nora was discharged from Children’s this morning with a very good report. Her latest echo has showed IMPROVEMENT in the left ventricular function (pause to really let that sink in). I am rendered speechless and amazed, once again, although I’m not sure why. I KNOW the power of our God!!! Nora’s head scan came back normal. All labs came back normal with only her thyroid levels being on the high side of normal. Her heart rate is still elevated into the 170s, but her doctors are confident we will be able to get it back down. As her heart rate is elevated when she is fussy, we are trying to eliminate her causes of fussiness. One of her big complaints is gas pains so we’ve decreased the calories of her milkies from 26 calories to 20 calories (which is the normal calorie) in the hopes that it will be easier to digest. She’s clearly gained enough weight now to where that isn’t so much of an issue anymore. Another fuss buster attempt is decreasing her Sildenefil dosage. One of the common side effects of this medication is headaches! Hopefully these measures will at least keep her heart rate out of the dangerous levels while we figure out how to get it back down to where it was.
One of Nora’s friends Robin J suggested the possibility of the recent Synagis shot being the cause of the elevated heart rate. We did mention that to the doctor. He said that certainly could be a possibility and definitely wouldn’t rule that out. Her last dosage was higher than previous instances because of her weight gain! Fortunately that was her last Synagis shot for the season!!
Another friend suggested low iron count as the culprit. We also brought that up but were reassured that her hemoglobin counts were all right where they should be.
Thank you all, so very very much for your prayers, your love and support, texts, voicemails, emails, FB comments and messages. Mom, Dad, Abby, Terri, Amber and everyone who offered to help us through these unplanned past 3 days, THANK YOU!!! YOU ALL ROCK!!!
Before it’s Christmas again, I will go ahead and post pictures from Easter that I’ve been meaning to get up. There is so much I want to say, but if I don’t get some sleep here I won’t be doing me or anyone around me any favors!
The LORD is my light and my salvation whom shall I fear? The LORD is the stronghold of my life of whom shall I be afraid?
Tomorrow is going to be an especially hard day for my family as we say goodbye to my Uncle Bill. Please keep us in your prayers, especially my Aunt Margie and Bill’s family and friends. ❤
Whatever you do, do well. For when you go to the grave, there will be no work or planning or knowledge or wisdom. I have observed something else under the sun. The fastest runner doesn’t always win the race, and the strongest warrior doesn’t always win the battle. The wise sometimes go hungry, and the skillful are not necessarily wealthy. And those who are educated don’t always lead successful lives. It is all decided by chance, by being in the right place at the right time. People can never predict when hard times might come. Like fish in a net or birds in a trap, people are caught by sudden tragedy.
(Ecclesiastes 9: 10-12 NLT)