Nora CICU Day 5

She got herself in a little bit of trouble last night and had to get mittens stuck on her hands. She’s not allowed to grab and rub at the itchy things in her nose-nose.

Morning ~


Evening ~


Night ~


Unless I really stop to think about it, I have no idea what day it is, how long we’ve been here, or that a world exists outside of these hallways. Just when I start to get bitter and angry about feeling like I’ve been physically and emotionally thrown down several flights of stairs, I hear the woman’s story about her 9 month old son who is already on his 5th heart surgery… The family whose baby boy is being dismissed with hospice on Tuesday because they’ve been told there’s nothing more that can be done… The families who have lived here for not just a few days, but months. Years even… The kind and dedicated nurse whose own father is undergoing treatment for leukemia. One minute he was a successful surgeon, the head of urology here at Children’s, the next minute he’s diagnosed with leukemia and fighting for his life. I’m angry at myself for having even a smidgeon of discontent, slapped back into the reality of just how abundantly blessed I am. How fragile this fleeting life is, I marvel to my disheveled reflection in the stark bathroom’s mirror. No matter what this life brings, I trust God.

He says, “Be still, and know that I am God; I will be exalted among the nations, I will be exalted in the earth.”
(Psalm 46:10 NIV)

The fevers have returned. Her little body fights fiercely and mightily. Please continue to pray for Nora. While you’re on the “phone” with God, if you wouldn’t mind praying for Nathan, for Samson, and for Dr. Sheldon and their families. I know they would appreciate it!


12 thoughts on “Nora CICU Day 5

  1. My husband and I are praying for Nora and your family. I just read one of my bible verses today and wanted to share it with you. “Have I not commanded you? Be strong and courageous! Do not tremble or be dismayed, for The Lord your God is with you wherever you go.” Joshua 1:9

  2. And while you sweet girl are reminded, I am reminded as well with your sweet posts and allowing us to be a part of your lives to let the small stuff go and be thankful for all of our blessings. We will continue to pray for Nora and all of you.
    I feel blessed to be a part of your journey. I wish I could wrap my arms around that sweet little sparkling face and kiss her cheeks!!!!! I can’t, but I will continue to pray and have Nora and all of you on my mind everyday. Sweet kisses please for Nora from all of us!!!! Prayers, prayer and more prayers will continue for Nora!
    Your beauty, strength and faith Aleisa, William, Greta and Gavin for Nora are what walks me through the day. Now, we all have this tonight, we will keep the prayers going tonight, go to sleep sweet mama!!!! XOXO

  3. Even though we’ve never met, I pray for you and little Nora often. You have touched me deeply. I pray now for your family and for Nora, that the Lord will give you all strength. Dr. Sheldon performed surgery on my son just before he was diagnosed. A great surgeon! Praying for him and the other children and their families.

  4. Yes, hospitals are the perfect place to count our blessings.
    I know it was a very loooong week.
    Praying that you can go home this week.
    How can she be soooo cute?.
    I wish I were there with her so you can have some time to get rest.
    Tons of kisses to my sweet baby !!

  5. Many prayers for all I can even spare some you and your husband and those sweet children at home. Love and prayers going up for Nora and all of her little and Big friends. Alice

  6. Your strength and peace, even in the midst of an unbelievably scary time, is so inspiring. I love reading your blog and am moved by it every time I do. I wonder if you stop and think about how God is using your beautiful Nora Rose to tell the story of His great love, and how many people are impacted by her each day? Amazing how her life is changing so many others. Will continue praying for your sweet girl, your family and start praying for the others you mentioned. Thank you!

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