A few weeks ago we sent Nora’s medical records out to 3 different hospitals based on the advice of a couple of other families in the t18 community. We are in quest of second opinions about Nora’s heart as it relates to her pulmonary hypertension (the reason for her oxygen tubes). Nora’s case was taken before the board at Cincinnati Children’s and it was concluded that Nora would not be a good candidate for heart surgery at this time. We were okay with that and the explanation that was given to us. However, this is our daughter’s LIFE we’re talking about. Of course we were interested in some other opinions just to make sure we have all of our bases covered. We have heard back from one of the hospitals. The doctor that William spoke with yesterday still has to bring Nora’s case before the board at his hospital, but he is of the opinion that Nora would be an excellent candidate for heart surgery. I won’t go into all the specifics, but basically it was a really good conversation. William said this doctor didn’t sound wishy washy about it – he very firmly stated that Nora would benefit from surgery.
(deep breath) We’re still anxious to hear from the other 2 hospitals, but this is definitely something we’re going to pursue. Yes, I am scared to death. It’s tough to reign my thoughts in from going there from trying to imagine what that whole experience will be like. I do feel like we are being led in the right direction. There are just lots of hills and curves and it’s impossible to see around every corner. While I’m humanly afraid, I am reminded of all the other times I was terrified out of my skin. Each and every time, without fail, God delivered us through the storm. I don’t doubt that this time is going to be any different.
Running low on sleep, so I will conclude with pictures! 🙂
We enjoyed this beautiful day at a park by the river.
Do not conform to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God’s will is—his good, pleasing and perfect will.
(Romans 12:2 NIV)