I’m so thankful when days like these come to an end! Today’s visit with the geneticist at Children’s sounded promising – although we won’t have any definitive answers until tomorrow’s visit. I’m afraid of getting my hopes up too high only to have the floor drop out from under us again. After an overview today, the geneticist did say that Nora is a superstar simply because she is able to eat on her own.
Being able to eat on her own greatly increases the probability of a successful surgery! She does not appear to be in any discomfort (other than gaseousness). She’s alert, strong, gaining weight, doing everything she’s supposed to. Okay, yes. My hopes are UP!! It would be so different if Nora were sickly, not gaining weight, generally struggling. In no way would we pursue prolonging any pain and suffering for our own selfish desires of having her around.
That’s the big news of today. I am physically and emotionally drained and have to prepare for another day of it bright and early tomorrow!
Here are pictures from today:
Goodnight and THANK YOU for the blanket of peace you’ve prayed upon us.
Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
(Philippians 4:6-7 NIV)