Nora – 85 Days Old

I’m so thankful when days like these come to an end! Today’s visit with the geneticist at Children’s sounded promising – although we won’t have any definitive answers until tomorrow’s visit. I’m afraid of getting my hopes up too high only to have the floor drop out from under us again. After an overview today, the geneticist did say that Nora is a superstar simply because she is able to eat on her own.

image

Yeah, I like the milkies, alright!

image

Being able to eat on her own greatly increases the probability of a successful surgery! She does not appear to be in any discomfort (other than gaseousness). She’s alert, strong, gaining weight, doing everything she’s supposed to. Okay, yes. My hopes are UP!! It would be so different if Nora were sickly, not gaining weight, generally struggling. In no way would we pursue prolonging any pain and suffering for our own selfish desires of having her around.

That’s the big news of today. I am physically and emotionally drained and have to prepare for another day of it bright and early tomorrow!

Here are pictures from today:

image

image

image

image

Goodnight and THANK YOU for the blanket of peace you’ve prayed upon us.

Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
(Philippians 4:6-7 NIV)

34 thoughts on “Nora – 85 Days Old

  1. I don’t know you, but my firstborn is a Nora, named after her grandmother, who was named after her grandmother…may your Nora grow up to be as amazing as mine. (She’s 25 now.) May God bring miracles tomorrow.

  2. I pray that whatever comes with those answers, bring you peace as well. Keep doing what you’re doing mama. You’re a rock star.

  3. You know, Aleisa: I was looking at yesterday’s photos and thought to myself, “Nora is getting a little chubby!”. She looks sooo healthy and happy. Our little girl is such a pistol . Just like her mommy. Go Nora Go!

  4. Prayers of peace for you and William, Aleisa and strength for you as you prepare for whatever direction this journey takes tomorrow. You are such a special family and Nora Rose fits right in! So thankful for your good reports and prayers that you can just put those anxious feelings and thoughts aside. Praying that tomorrow is full of good news. Nora Rose truly reflects God’s goodness and LOVE.

  5. Thanks, Aleisa, for keeping all of us so posted; I don’t believe I would have the energy nor courage to do it so well. I believe you are actually going to the hospital/doctor to hear results tomorrow? Picture the cell phone commercial where the man in glasses is in front saying, “do you hear me now,” while hundreds of people are standing behind him. Well, that will be us tomorrow! Your many friends all over the world who you have never met are rooting for Nora Rose and we are holding our breath!!! I pray to God to hear our prayers and to give mercy for sweet Nora Rose! All of our love and support!

    Barbara Smith

  6. Thank heavens for a positive to go to bed on tonight – she can eat on her own!! Big statement with a huge meaning behind it. Rejoice in those words and that accomplishment for the day. I feel those words carry lots of weight on the decisions that are coming. God gives us his plan in pieces, not all together, as he watches each step to measure the process before he divulges the nest part Miss Nora Rose is just flying along with Her Master in command, and she is quite comfortable. Take that as a plus as you talk to the next specialiast. If you have questions, or doubts, talk them out with the doctor, do not go home to worry about them. That is your right and the reason the doctor is there to make sure you understand your options. So far, you have done a miraculous job with God’s help in making the right choices. You will continue to do the same. Don’t doub yourself!!Have a good night and will be anxiously awaiting tomorrow to hear of your report.

  7. I AGREE WITH EVERY WORD BARBARA SMITH HAS SAID. WE WILL ALL BE THEIR IN THOUGHT TOMORROW. OF COURSE YOU WILL BE IN MY PRAYERS TONIGHT (AS ALWAYS) TOMORROW I WILL BE PRAYING ON AND OFF THE WHOLE DAY FOR SWEET LITTLE NORA ROSE AND THE REST OF HER REMARKABLE FAMILY. GOD WILL BE RIGHT BESIDE YOU AND HE WILL HELP YOU GET THROUGH THE DAY TOMORROW. I DO BELIEVE THE NEWS WILL BE GOOD. NORA IS DOING SO GOOD AND EACH AND EVERY DAY I AM CLAIMING HEALING FOR THAT SWEET LITTLE GIRL. SHE IS SO STRONG. I LOVE THE PICTURE OF NORA SLEEPING. SHE IS SO BEAUTIFUL. ALSO THE ONE OF NORA AND MOMMY SLEEPING IS A BEAUTIFUL PICTURE. YOU AND WILLIAM ARE SUCH GOOD PARENTS,AS I LOOK AT THE PICTURES YOU POST OF THE WHOLE FAMILY, I CAN ACTUALLY FEEL THE LOVE YOU ALL HAVE FOR THAT BEAUTIFUL LITTLE GIRL. I HOPE AND PRAY YOU HAVE A VERY RESTFUL NIGHT. THINK I WILL CALL IT A DAY AND GO TO BED. GOOD NIGHT AND GOD BLESS.

  8. I’m praying for the hospital appointment.I’ve also asked some friends to pray.
    Yes, the geneticist is right, she’s a very CUTE superstar. 😉

  9. Hoping and praying you are waking up to a peaceful mind and heart. Thinking of you all…and hoping that realizing it’s out of your hands sends a flood of comfort and calmness. And thank goodness because I am pretty sure I would MUCH rather God have control than any of us! He kind of knows exactly what to do 🙂 Remember that.

  10. she IS a superstar (like her mum)! and it’s true, you can see form the pics you post that she is more chubby!! she is so sweet! praying for your thursday hospital appointment, love love, silvy

  11. The picture of you and her sleeping side by side is simply beautiful. A mother with her heart literally outside her body. That’s what all of us parents feel like. Continued prayers!

  12. Praying for each Yusko heart today! Put all of your trust in the Lord today.
    “Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.”
    Proverbs 3:5-6

  13. Alesia and William, I don’t know you or your family, but your story of your beautiful little girl has touched my heart. Every day is a blessing and a victory. Peace to all of you, and to your family and friends who are walking with you.

  14. I can do all things through Christ who strengthens me. Philippians 4:13. May the peace of Christ and the presence of the Holy Spirit be with you tomorrow ans always.

  15. Every time I think of you I am thankful for your witness and your patience. You are an amazing role model. You have no idea!!! Thank you for being so honest about your struggles.

  16. (My devotion today..thought of you guys!)

    Seeing Adversity from God’s Viewpoint Isaiah 55:8-9

    When adversity hits you like a ton of bricks, it could easily throw you into a pit of discouragement and despair. Although you may consider difficulties as setbacks, the Lord sees them as times for great advancement. His purpose for allowing them is not to destroy you but to stimulate your spiritual growth. In His great wisdom, the Lord knows how to take an awful situation and use it to transform you into the image of Christ and equip you to carry out His will.
    Every adversity that comes into your life is sifted through God’s permissive will. That doesn’t mean the difficulty itself is His perfect will, but He’s allowed the trial to touch you so that He can use it to accomplish His wonderful purposes for your life. Although some of the suffering we see and experience seems senseless or blatantly evil, we must recognize that we have a very limited perspective and cannot always understand what the Lord is doing.
    Our heavenly Father sees every aspect of life, but our view is restricted to what is right before us. His plans include not only you but all of His creation, and they reach from the beginning of time to eternity future. Though we’ll never grasp the infinite mind of God, we can know His faithfulness and love.
    When you can’t understand God’s ways, focus on His perfect knowledge, wisdom, and power rather than the magnitude of your sorrow. Remember, He sees the entire picture and loves you more than you can imagine. This is a time to walk by faith, as perfect understanding comes only in heaven.

  17. Thanks for the beautiful pictures. It is very obvious that little Nora loves her milkies and she sure shows it. She is filling out beautiful. Praying for you for wonderful news tomorrow.

  18. Have prayed for you all today and especially for the emotionally worn out two of you that I am sure you both are. I asked a counselor friend of mine if you could ever be so emotionally drained it hurts to try and breathe…….hold onto to HIS COATTAILS and little Nora…..you go girl!!!!!!! We are getting ready to visit Cincinnati Children’s…(next week…6 hr drive for us).will wave every direction as we drive into the parking lot so that you know Andrew and I will have you along with so many others on their journeys in our hearts.

  19. Your family has been in my thoughts and prayers all day. Praying all went well today and know that Nora is in many many prayers tonight.

  20. I HAVE BEEN PRAYING FOR NORA AND THE FAMILY ALL DAY, AND WILL CONTINUE TO DO SO. I KNOW YOU AND WILLIAM HAVE TO BE SO TIRED. HOPE YOU GUYS GET A REALLY GOOD NIGHT’S REST. I PRAY YOU GUYS GOT GOOD NEWS TODAY. LOVE YOU GUYS. GOOD NIGHT AND GOD BLESS.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s