Your comments on here and on FB have been such an enormous comfort to us today. I’ve read and re-read each one of them. I love how God speaks to us through others. Thank you for your love and encouragement! It’s not been an easy day, but to know there are so many of you out there praying for us makes all the difference in the world.
Please keep my friend Dana in your prayers she delivers her sweet angel baby DaLove today. DaLove was also diagnosed with trisomy 18, yet her Mommy lovingly and hopefully chose to carry her as long as God would allow. Sometimes God’s plans are not our plans – I struggle with that myself. I pray that Dana and her family will be wrapped in peace that surpasses all understanding as they journey through this saddest of times.
Here are pictures of Nora from today.
And a cute one from the other morning that I found on William’s phone.
Goodnight!
The Lord is close to the brokenhearted
and saves those who are crushed in spirit. (Psalm 34:18 NIV)
iwillcarryyou 
She is still the cutest baby on the planet. Period. I will continue to pray that she beats the odds and proves that there exceptions to the rules. Go Nora!!!
Keep on praying.
In all the pictures you’ve posted where Nora is sleeping on you, she rests her head on your left side, probably to hear Mommy’s heartbeat. 🙂 Soooo cute !!.
I had a patient this week who delivered a sweet boy with trisomy 18 and even she had seen your blog. She found comfort in her online community. She did not get her 5 min with her son that she peayed for but knew each day she carried him was a gift. Thank you and Nora for preparing me to take care if this amazing woman and her child. God bless your family as I am praying for you.
Praying for you, your family and especially Nora…that God will surround her with a hedge of protection and an amazing health care team, that He will show her little heart and lungs how to work correctly so that Nora will continue to bless so many lives with just her presence. Surrounding you with virtual bloggy hugs, from one mother to another.
Alesia – I am a friend of your sister Sarah and have been blessed to follow your story almost from the beginning. I want to encourage you today and tag onto what you wrote yourself about the disciples struggling in the Sea of Galilee. I learned recently in a bible study that the disciples were struggling in the crashing waves for at least 6 hours or more, which was a lot longer than I had ever imagined. It reminded me that sometimes we have to struggle for much longer than we feel is necessary. I also learned that when Jesus started out walking on the water, He intended to pass right by them, but it was only when they cried out to Him that He turned and came toward them. I believe that you understand this firsthand because it was so clear to me that you had this same experience during Nora’s birth when there was a brief moment where you thought you might lose her. I encourage you to continue to cry out to Jesus (not that you need any encouragement in that area) and I am going to do the same for Nora, you, and your family and I will do it in His Name. I pray for God’s grace, blessings & mercy over you.
Dear Alesia,
I have been following your blog about sweet Nora for some time now, and have bee utterly blessed. I have an 8-yr-old little blessing named Brandon who has a dual diagnosis of Down syndrome and Autism. I was so grieved to read your post about the cardiology visit. Please know that I, like so many others, have grown quite attached to Nora, and that she will be in my daily prayers! I will also put her on my Moms In Touch prayer list. Sending you love and blessings from a mom who totally “gets it” – Carol
I love reading and looking at pictures of Nora. She is perfect and so very cute:)
I am praying for your baby and your family, she is beautiful my heart goes out to you! So glad you keep a journal precious memories you will have forever!
HI ALEISA. OUR ELECTRIC HAS BEEN OUT SINCE THE DAY YOU POSTED THE DR. VISIT. I GOT TO READ THAT ONE, AND THEN NO ELECTRIC! I HAVE BEEN PRAYING FAITHFULLY FOR ALL OF YOUR FAMILY AND WANTED YOU TO KNOW WHY I HAVE NOT BEEN ON HERE. IT HAS BEEN A LONG 2 1/2 DAYS NOT KNOWING HOW NORA AND THE FAMILY IS DOING. BUT I AM CATCHING UP NOW. LOVE AND PRAYERS.
She is such a cuddle bug! I have put her pictures on my fridge and in my office so I remember to pray for her more often. Your faith in Him will carry you as you are also carrying little Nora. She is SUCH a miracle!
I haven’t been on my computer, and I am just now reading about your cardiologist visit with Nora. I can only imagine how you must be feeling. I am lifting up precious Nora in prayer and your whole family!! May God’s Unfailing Love surround you as you trust in Him. Much love to you!!!!