Late this afternoon I was contemplating what our next plan of action would be regarding Nora’s little lungs. We have the sleep study scheduled, but that (to
my knowledge) will not offer any insight to the CAUSE of the “chronic lung disease” (?)
Out of curiosity, I hooked Nora’s little foot up to the pulsox machine and turned the oxygen down to ½ liter from the ¾ liter she’s been on. After about 45 minutes it was plainly obvious that she was able to withstand being at a lesser amount. I suppose I had accidentally determined that on our walk the other day that Nora CAN be without, but I never knew where her sat levels were. In the past while being monitored, she could get down into the low 70s before it would be obvious in her coloring. For most of the evening Nora’s sat levels never went below 96 while on ½ liter!! We then lowered it to ¼ liter, which is where she is now, and she continues to stay up in the high 90s!!
I’ve been walking on clouds all evening and will assuredly fall asleep with a big fat friendly smile on my face tonight! (Nurses and friends continue to stay the nights with Nora to allow William and I the LUXURY of sleep!)
This is just my theory – and I would love some more input from all of you nurses, doctors, and medical professionals, etc. out there: Could Nora’s lungs have just been simply underdeveloped which then caused that scary blue spell at about 12 days old (which is when she went on oxygen)? Now, with having been on the oxygen for as long as she has, could that be the cause of whatever is showing up in the recent xray as “consistent with chronic lung disease”?
We appreciate any and all advice!
For I know the plans I have for you,” says the LORD. “They are plans for good and not for disaster, to give you a future and a hope.” (Jeremiah 29:11 NLT)