Nora CICU Day 2

Nora did well throughout the night and got some good rest. Her Mommy and Daddy were also afforded the luxurious opportunity to get some sleep, thanks to our awesome, wonderful nurse and friend Amy S. who stayed up with Norns through the night.

William went back home and I went down the hall to one of the parent sleep rooms. Beggars cannot be choosers and I was delighted to sack out in this quaint little accommodation. ~

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Nora’s potassium levels were low this morning. Because of the volume of potassium needed to get in her belly they had to install an NG tube. It’s not safe to have her taking anything orally right now being on the high flow oxygen. Her levels have checked out good since.

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She’s had some mild fevers this morning and the cooling blanket was able to keep things balanced out.

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The doctors are concerned that a bit of this pneumonia may be bacterial based on one of the lab counts that came back this morning. They opted to insert a PICC line and administer a higher strength antibiotic through that. PICC stands for Peripherally Inserted Central Catheter. This is Nora just before the insertion. We had to leave her for about an hour as it needed to be done in a sterile environment with positioning checks by X-ray. She has numbing cream and warming packs on her arms — not sure which arm they were going to use at that point.

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The insertion was successful on the first attempt! Nora now has a trusty PICC line AND this girl is certified!

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We heard she wasn’t too happy about some things and is now completely tuckered out.

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The fevers have waned and her cooling blanket has actually been pumping some warmth through it instead of the frigid cold! That really relaxed her and she’s been sleeping so peacefully!

The doctor who listened to her lungs this afternoon said they sounded better than they did this morning. Her oxygen flow has been decreased a little bit and generally she is doing better! Our prayers are being heard loud and clear!

While I was waiting for the TPN (liquid nutrition) the nurse came in with a bottle of fresh milkies!!!!! That will be administered to her through her now ND tube (tube going directly into her intestines to bypass the risk of pukes from her belly) instead of the NG (into belly) tube.

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Thank you so very much for your prayers and a of your encouraging words!! We are so blessed by all of you!!

Nora CICU Update

The stained glass window in the chapel area. Looks like THREE BIRDS to me!!

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So here is what is going on. The below image is a comparison of Monday’s X-ray vs. today’s X-ray (autocorrect keeps trying to correct “X-ray” to “cray”. That’s totally cray.)

Monday’s is on the right and today’s is on the left.

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The cloudy areas have increased – which is the pneumonia. It is looking more like a viral type because it is not responding to the antibiotic. The pneumonia is causing the high fevers. Nothing new has shown up in the blood labs, which is good.

This morning was absolutely terrifying. Shortly after I arrived to the hospital at 6 am {after a semi-restful night at home thanks soooo much to Kate R. who offered to stay with Nora} the doctors and nurses started accumulating in our room rather quickly. Nora’s temperature and heart rate were were on their way up Mt. Everest in an unpaced sprint. I barely knew what was going on before the brakes were being taken off of the hospital crib. Suddenly I was following my blazing hot baby girl down a maze of sterile hallways through a haze of tears to CICU. She’s been on an extraordinary amount of O2 throughout the day which has gradually been weaned down to 40% of high flow oxygen. Slowly but surely her temperature was brought down to a reasonable level by means of Tylenol, ibuprofen, iced towels and a cooling blanket. Her heart rate followed suit.

When I went home last night my Big Kids were still awake. I was soooo happy to see them. We hugged and kissed and talked for a little bit before it was time for bed (again). As I tucked them into bed Greta got teary. She really really missed Norns. That absolutely broke my heart.

When things looked like they were taking a really bad turn this morning, I opted to extend Gavin and Greta’s 2 hour school delay into a 4 hour delay. They NEEDED to see their baby sister, as did Our Kelly. When I met them down in the lobby I could see the panic in their eyes. I remember how SCARY this place was the first time I was in it. Fortunately by the time they arrived, Nora was a little better and not in as much distress as she had been. They ended up having a very sweet visit. It was so good for all of them!

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Later in the afternoon, Nora’s temperature and heart rate were on the rise again, her breathing very labored. There was talk of intubating her if things didn’t settle down. That nearly threw me over the edge. The ibuprofen wasn’t working (which Nora so cooperatively took by MOUTH!!!!). The Tylenol wasn’t working in the IV. Last resort was a collection of ice watered towels and then a chilling blanket, and the thermostat turned way down. We were freezing our butts off, but little miss didn’t seem to mind in the least. Her sweet little body responded to the cold and all of her stats were neat and tidy again.

“Dis is kinda cold!”
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She sure loves her Dad!!

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Family doodles ~

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Sweet cakes ~

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I am overcome with emotion at the tremendous outpouring of love from so many people in these past days. Your kind words were so comforting this morning and this afternoon. Nora is one LOVED little girl. I wish she could grasp the enormity of it all… Maybe she does. (?) THANK YOU for loving my precious baby girl and for praying her over each hurdle she encounters. Thank you for praying for and taking care of the rest of my family too. We are SO SO blessed.

Today started and ended in tears, except these tears are tears of joy and gratitude.

Be joyful in hope, patient in affliction, faithful in prayer.
(Romans 12:12)

Give thanks in all circumstances; for this is God’s will for you in Christ Jesus.
(1 Thessalonians 5:18)

BREAKING NEWS:
On January 6th, Nora tested positive for RSV. On January 8th, two days later? This morning’s test that just came back? SHE IS NEGATIVE. NORA IS NOW NEGATIVE FOR RSV!!!!! You think I’d be used to this kind of stuff by now, but I am speechless and wowed again by the healing power of prayer to a generous, almighty, incredible, crazy awesome, tender-hearted, compassionate, all-powerful, ever loving GOD!!! Just like that. Just. Like. That!!! THANK YOU, GOD!!!!!!!!!!!!!!!!!!!!

P.S. I loved reading about a prayer vigil going on on a Metro bus for Nora today!!!! I can’t wait to go through ALL of the comments and messages.

“All deez prayers for me??!! Wh… Tank you!!!! Tank you so much!!!”
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Nora CICU

I’ve been updating little blurbs here and there on Nora’s Facebook page: Praying for Nora Rose Yusko. It’s just much easier to update there.

Currently Nora is in CICU at Children’s Hospital with her heart rate elevated up into the 200s and a fever of 105.3°.
She was admitted on Monday with congestion on her lungs and terrible upper respiratory junk. She had a few mild fevers, but nothing like this. Monday she tested positive for RSV and another virus called hMPV, as well as some suspected bacterial pneumonia. The pneumonia is being treated with ampicillin through an IV, the other stuff just has to run its course as it is viral. Nora had been doing well, had been eating GREAT – we even got a couple of smiles here and there.

For some reason, yet undetermined, she spiked the highest fever she’s ever been known to have just this morning around 6 am. The fever has brought her heart rate through the roof. The RSV, hMPV do not typically bring about a high fever like this. More labs have been drawn to check for any other infections. Her chest X-Ray is looking a little worse and she is now on high flow 5 liters of oxygen.

We are hanging out here in the CICU so they can keep an extra close eye on her.

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They’ve put something in her nose (trumpet) to assist with suctioning as her little nose was getting pretty agitated. She’s resting peacefully right now. Fever is down to 102.2° and heart rate in 170s. Thank You, God!!!

We appreciate each and every one of your prayers. I am so comforted by all of your messages, texts and emails. I obviously can’t respond to them right now, but I am reading them when I can.

Two people have written to me about dreams they had of Nora in the past couple of nights. In both dreams she was older and talking, very happy. Neither of these people know each other, one has never met Nora (or me) in person YET. I take these very seriously as God-sent messages. Remember Greta’s dream in which He LOUDLY spoke to us with that beautiful glimpse into the future!!!!!!!

From Jesus Calling today:

January 8

Softly I announce My presence. Shimmering hues of radiance tap gently at your consciousness, seeking entrance. Though I have all Power in heaven and on earth, I am infinitely tender with you. The weaker you are, the more gently I approach you. Let your weakness be a door to My Presence. Whenever you feel inadequate, remember that I am your ever-present Help.

Hope in Me, and you will be protected from depression and self-pity. Hope is like a golden cord connecting you to heaven. The more you cling to this cord, the more I bear the weight of your burdens; thus, you are lightened. Heaviness is not of My kingdom. Cling to hope, and My rays of Light will reach you through the darkness.

God is our refuge and strength, an ever-present help in trouble.
—Psalm 46:1

Be joyful in hope, patient in affliction, faithful in prayer.
—Romans 12:12

May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.
—Romans 15:13

As always– SPOT. ON. Wow….