Monday

Today’s Special was a dollop of hand-smeared whip cream served chilled over blue desk of baby.

“Eenen I had dat stuff all over my face, on my ears, in my hair… I had to schedule a baff!”

“Whip creams are kinda neat, but I like my milks!”

“Have I showed you my lippy?”

We’re back down to 1.5 meager mL of coconut oil and will verrry slowly try to advance! In hearing from others, this seems to be the best approach for keeping Angry Belly Baby at bay.

Tuesday

Someone sweet got carried out to the car half asleep, all warm and cuddly, a condition known in our family as “schnoogy”. {I love that my phone recognizes this term and appropriately autocorrects 😄}

Nora had an 8:45 pulmonary appointment to discuss the results of her sleep study that was done awhile back and just a general checkup that all is as it should be!

She’s such a good, good girl in the car now!!!

“Elanora Yusko?”

“Ohh! Over here!! Dats meee!!!”

Dr. C is among Nora’s excellent team of doctors. We hadn’t seen her in quite awhile which, as much as we like and appreciate her, is a good thing! There is nothing urgent or pressing as it pertains to Nora’s lungs. The sleep study showed that Nora definitely needs to be on oxygen through the night, but during the day we’ve been given the green light to start experimenting with lesser and eventually no oxygen throughout the day, as long as that’s okay with cardiology. We also discussed long term solutions to optimize her airflow in regard to tonsils and adenoids. They will take a closer look at those while she is sedated for her ear tubes. Nora hinted that she didn’t appreciate the tongue depressor by promptly puking all over Dr. C and the examination table, “You wanna try dat again??”😝

We left the hospital with joyful and thankful hearts!

I am still in absolute awe over the incredible, amazing reassuring God wink that I got on our way to the hospital that rendered me SPEECHLESS. I have tears in my eyes and goosebumps as I type this because it was so bold and so obvious. We were passing University Hospital which brought my Uncle Bill to mind. It’s so hard to believe he’s gone, I thought to myself. As a wave of sadness washed over me I received the inaudible nudge, “Look for the white PT Cruiser,” which was the car I knew Bill to be in when he wasn’t on his motorcycle. I looked away from University Hospital not at all expecting to see a white PT Cruiser and dismissed the thought as my own silly imagination. But no. There it was. A white PT Cruiser. Not a blue one, not a black one, not an orange one, but a white PT Cruiser. EXACTLY what I was told to look for! I didn’t even have to look around for it. It was heading directly toward us in the opposite direction; not another car in front of it or behind it. I stared at it, turning around to watch it pass, completely dumbfounded. The wave of sadness ebbed back out to sea. I was left with the profound reassurance that not only was Bill enjoying the luxuries of Eternity, but that such a huge and mighty God cares about “little insignificant me” on such a very grand and personal level.

Please keep my brother-in-law Dustin and his family in your prayers. His Dad is in the last days of his life after a cruel battle with liver cancer. This is a terribly difficult time for all of them.

For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.
(Romans 8:38-39)