Sunday Afternoon Fever

By Sunday afternoon Nora’s fever had climbed up to 102.1° (38.9° C) and she was miserably uncomfortable.

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I talked with her pediatrician and we decided it was best to get her over to Children’s to get some more testing done sooner than later. Plus we “just happened” to have our Sitter Extraordinaire in place to watch the big kids. Another instance of the right people being in the right place at the right time.

Once at the hospital we got right back to a room. The admitting nurse was just blown away that Nora feeds orally and she is as chunky as she is – 17 lbs. 14 oz. It’s in those moments that I am reminded of what a rarity and what a miracle Nora really is.

She had her bouts of fussiness, but we were able to keep her content for the most part. Her sweet little eyes light right up at the sound of her Dad’s voice or his whistling.
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In the radiology waiting area there are two birds on one wall –
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And the third on the opposite wall (along with a beautiful dragon fly!) –
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They took blood, they took urine, they did a nasal swab, they did a chest X-ray, and an EKG. Each and every test result that came back was completely normal. CBC levels were exactly where they should be. Procalcitonin labs did not show anything and there is nothing abnormal in her urine. The only test results we will have to wait for is the nasal swab.

“This stinks!”
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“Is it time to go home yet??”
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With nothing really to treat but the fever itself, we were given the green light to head home. We’ve become fairly familiar with the doctor who was attending to us through previous ER visits and admissions. When he was finished going over everything, he asked if there was anything else he could do for us. William boldly responded, “You could pray for Nora?” Dr. D. smiled and said he would gladly do that. Then he asked, “Would you like for me to pray for her right now?” Absolutely!! So there we all were with our hands on sweet baby Nora while this awesome, awesome doctor PRAYED over her. It was truly a beautiful moment!

Was it any surprise when we lifted her up and saw a heart-shaped sweat mark from her hot little head?
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We arrived back home around 10:00 that night. It was such a relief to be home!!!

Then along came Monday! Nora had an uncomfortable, restless night and seemed to be starting the day off not so great either. She cheered up a little as the morning progressed and after some Tylenol…

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…and milks.
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I took some time away this afternoon to offer my condolences to a couple of friends from many years ago who just lost their father. We’ve been in touch through FB and I just felt it on my heart to at least go to the funeral even if just for a few minutes. I had intended to show up before the service started and then leave to allow the family that time together. However, the service was starting JUST as I was walking in. I quickly and discretely took a seat in the back row of seats. Initially I was nervous that I’d be noticed prematurely, that my sudden presence would distract from the matter at hand. But I settled down and politely blended in for the duration of the service that I hadn’t meant to intrude on. As I sat listening to the pastor eulogize this man I had never met in this lifetime, I couldn’t help but think that I was meant to be there to hear what he had to say. To hear Psalms 46 read out loud was incredibly powerful, as was the famous 23rd Psalm. I hoped this grieving family was just as reassured by these words as I was. The hairs stood straight up on my arms when the pastor concluded with Isaiah 41:10 — “So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.” Yes, He HAS, He DOES and He WILL!!! K. and C., you and your family are in my prayers and I truly am so very sorry for your loss.

I do wish it were under different circumstances and that I could have visited longer, but I did have to get back home to Nora and her nurse. Back home, things were pretty much the same. Nora was uncomfortable, unhappy and hot. The 102.2° fever warranted another dosing of pain reliever (it was Motrin’s shift), and a lukewarm bath. Slowly but surely her temperature went down and her comfort level improved. Just as we started to breathe a little easier Nora choked up a blob of mucus with a tinge of brown to it. Motrin? Very light orange. Sildenefil? White. Lasix? Clear orange. Could this be blood?? A few phone calls were made and within 15 minutes we were well on our way to the pediatrician’s office with a placated baby girl and a suspicious burp rag in a Ziploc bag.

At this visit we determined that it was indeed blood, but it was such a tiny amount that there was no cause for alarm. It could have been from her sinuses, her esophagus (from wretching), or perhaps the lining of her stomach (maybe irritated by the antibiotic?). It was not fresh blood and could even have been from the nasal swab test which was slightly invasive. Obviously keeping an eye on subsequent pukings.

Also while we were there the nasal swab results happened to come in. (Drum roll without a ‘tada’ at the end…) Everything came back negative. We gots NUTHIN. Again, we are so blessed and thankful that Nora is not suffering from RSV or any of the influenzas, etc. But, as with all the labs, there is nothing showing up, nothing to treat. Just these unexplained fevers.

We plan on paying visits to the ENT, immunologist, and GI to see if they can determine anything.

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I probably should call it a night, as I almost squirted saline solution on my toothbrush and stored my contacts in toothpaste.
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And my God will meet all your needs according to the riches of his glory in Christ Jesus.
(Philippians 4:19 NIV)

7 thoughts on “Sunday Afternoon Fever

  1. It’s so frustrating !!. Idiopatic fevers they call it, which is a fancy term for ” we have no idea what is causing this “.
    The Dr praying over her …how beautiful !!. That’s holistic care !!.
    As my Mother would say we always have to thank God, because , despite the hard circumstances, we’re given the people and the resources to deal with them. I say this, because , for example, when I had to deal with my Mom’s long illness it’s easy to self-pity ( why me???) , and taking for granted the access to top medical care, having people to help etc . And the truth is that many people have to deal with all that with very limited resources, in extremely difficult conditions. So, thank you God, because Nornor can get medical care at one of the country’s top hospitals in what’s probably the country with the best medical resources in the world !!.
    Thank you God, for the nurses who care for her at home.
    Thank you God, for the family and friends who love her and pray for her.

    Poor Mommy, you must be exhausted. Try to get rest when you can… ” Siesta” (nap) , even if it’s just a few minutes, makes a big difference after a sleepless night.
    I keep on praying. It seems I’m far away , but I’m very next with my thoughts and prayers!!.
    Tons of kisses for my sweet baby !!. Muuaahhh 🙂

  2. It almost sounds like she’s having an episode of autonomic
    dysreflexia, which sounds a little crazy because that happens in
    people with spinal injury. I’m a peds home health nurse that works
    with a little girl with spina bifiida and she had a period of time
    when she was having increased heart rate(bradycardia is the usual,
    not in her case), fever, high BP, which turned out to be AD and was
    caused by her bladder medication (to prevent spasms) not being at
    the correct dosage. What little I have just tried to research on
    it, it looks like it is “usually” seen in spinal cord injuries, but
    that doesn’t mean it always is. Has her BP ever been high? Just a
    thought. I know this is truly frustrating to not have any answers,
    so I thougt it might help lead you in another direction. God bless
    little Nora and her family!

  3. Poor everyone 😦 I’m NOT a doctor…….but I remember
    hearing about a child that had a fever from medication (it was
    actually tylenol as bizarre as that sounds…they tried
    everything…then stopped the tylenol and the fever subsided).
    “Drug fever” I think they called it. Again…not a doctor….and I
    know you probably don’t care for excessive “helpful suggestions”,
    especially from non-medical professionals….but thought I’d throw
    it out there. I don’t think it’s something that happens very often.
    Regardless of the cause…I hope she feels better soon!!!

  4. There is a doctor (an MD) up in Cleveland where I’m from.
    He has a traditional office and sees patients on a normal basis,
    but he also does prayer services. We have brought Ryan to see him
    twice. He travels and sometimes comes to Cinci. Is website is
    http://pathtofaith.com/index.php. He starts with an inspirational
    talk, then Q/A, and then does a prayer over each person in
    attendance (kids always go first) and it’s an amazing experience.
    Just thought you might be interested.

  5. Ugh, it’s scary when there is blood coming from anywhere,
    but especially vomit. My middle son (3yrs old) was vomiting up
    blood a few weeks ago very scary thankfully it was because his
    esophagus was irritated from vomiting so much and not more serious.
    Hopefully Miss. Nora is on the mend, I love reading these tidbits
    and seeing her precious expressions. My 10 month old loves seeing
    her too and squeals each times she sees her.

  6. I AM SO HAPPY EVERYTHING IS NORMAL. LOVE THE PICTURE OF WILLIAM AND NORA TOGETHER, SO TOUCHING. THAT WALL IS SO COLORFUL, BET THAT ENTERTAINED NORA WHILE SHE WAS THERE. BLESS HER LITTLE HEART. I CONTINUE TO PRAY FOR NORA AND HER AMAZING FAMILY.

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