Harrison’s Heroes

Now that the big kids are out of school I’ve discovered my allotment of time and energy is MUCH to be desired. I know you understand, but I apologize anyway for the infrequency of my posts! Here’s the past three days ~

Saturday

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Last year I had the pleasure of meeting Emily & James Mummert. The pleasure was tinged with sorrow as they had then very recently lost their son Harrison to trisomy 18 on May 29th of that year.

Just over a year later they put together an amazing event in memory of Harrison in the form of a 5 and 10 K race. Over 500 people (!!!!!!!) showed up to celebrate the short yet mighty life of Harrison James Mummert. Because this little boy simply existed there are people that otherwise would not know each other who can now call each other friends. Because of Harrison $8000 (!!!!!!!) from this awesome event will benefit the NICU at Dayton Children’s Hospital to assist other families who are faced with weighty hospital bills on top of the already stressful experience of having a medically fragile infant.

Carry each other’s burdens, and in this way you will fulfill the law of Christ. (Galatians 6:2 NIV)

Pictures from the race:

Emily (and Baby Marshall due in a couple of weeks 😊), me, and James
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It was absolutely awesome to meet Harrison’s Nini & Poppi, his Nana & Papa, as well as some of his aunts, uncles and cousins. I even got to meet some of you awesome prayer warriors who also came! You’re all awesome!
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Awhile back James wrote a poem about their loss and asked a good friend to set it to music. These friends performed the song live and I don’t think there was a dry eye in the parking lot. Kate R., who came along with me, pointed out the three birds that flew over the tent during the song. Of course!
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And they’re off!
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Duck-faced self portrait, while running, seconds before I SUPPOSEDLY tried to “off” Kate into a ditch!
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Many Multiple Marathon-Runner Kate probably could have run circles around me (which is why I tried to get rid of her around the first bend – she makin’ me look bad!!), but she kindly opted to stay at my “arduous” pace. I was amused that she was able to converse with me as if we were simply sauntering down a grocery store aisle. I would respond in sentences with 30 seconds between each word, meanwhile trying to coordinate my pissed off heart and lungs! “WHAT…. are…. you…..doing…. to…… us???!!!???!!!!???!!!” they demanded.

Considering this is the first time I have ever continuously run such a CRAZY distance (3.1 miles!) I’d say I made pretty good time! I was rather pleased with myself and now I know I can actually DO that! Now if I can only convince the rest of my body!

Kate’s fancy runner’s watch:
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Checking in on Norns from my parking space.
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We had planned on bringing her with us, got her acclimated to the jogging stroller for this and everything. She still wasn’t feeling her best and stayed home with her Dada.
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Meanwhile back in Kentucky – a boy and his Papa. Papa was able to take Gavin to his baseball game. This picture made me smile. I love their sweet relationship!!!
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Once I got back home Nora and her Daddy did their run for Harrison. Look who got Bib #1!!! What an honor!!!

“I’m number ONE!!!”
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They did a 4K πŸ˜‰…. Well… William did.
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It started drizzling and I got a phone call to come to the rescue. I got Norns in the car, but there was no room for the jogging stroller, so William just ran home with it in what had become a bit of a downpour! Incase you were one of the witnesses who were befuddled and confused first at the sight of “some idiot running with a baby in the pouring down rain… No wait… There’s not even a baby in the stroller!? It’s empty!” as you passed by in the comfort of your dry car, my hubzbind is not crazy. He wanted you to know.
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“Whuuuu!! That deserved a baff!!!!”
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Sunday

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Nornor still isn’t quite back to par yet. After brainstorming with Kate on the way up to the race Saturday, gleaning advice from the trisomy 18 online community, and speaking again with Nora’s pediatrician Saturday evening this is all looking more and more like an ear infection that we’re dealing with. The last Dr. B was able to peek into her mouth her throat looked a little red. She has mucus that she’s coughing and gagging up that must be coming from somewhere (ear drainage?). That’s triggering her gag reflex which is causing the vomiting. It’s seems likely that she had the ear infection with her previous illness which involved lots of upper respiratory junk. She’s on her back a lot, which of course would increase the likelihood of it migrating to her ears. We put her on the Augmentin which eliminated some, but not all of the bacteria. After 4 days of being on the Augmentin she started feeling better and we had Happy Baby back for a few days.
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The remaining bacteria had a few days to regroup, start up some club music, disco ball, dry ice, and began breeding again. Then we got Sad Baby right back. I wish we could see into her ears, but as we’re not able, this seems to be the likeliest of scenarios. She is on another different antibiotic called clarithromycin which will hopefully do its job!

In the mean time we are keeping her comfortable with ibuprofen, Tylenol and extra special loves.
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“I love my Brudder n Sister!!”
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“And baffs too!”
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Monday

Nornor definitely seems to be making some progress. She still had some fevers going on in the morning, but perked up after some Advil.

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After her nurse arrived I took the big kids to the library and watched them play chess.
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After the game abruptly ended over a conflict about the rules I told them to pick out some books. I had to explain to Gavin that a DVD and Sports Illustrated didn’t count as books and ended up picking something for him as he was busy pouting.

Back home Greta invited a friend over while Gavin went up the street to play. The girls and I went creeking!
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“Who? Me?”
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“Yeah. I’m cute.”
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“And kinda sleepy!”
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Nora. A dear, a female dear.
Ray. A golden drop of sun.
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G. A name, he calls himself.
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Lah. A long long baff to take…
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The Lord will guide you continually, giving you water when you are dry and restoring your strength. You will be like a well-watered garden, like an ever-flowing spring.
(Isaiah 58:11 NLT)

6 thoughts on “Harrison’s Heroes

  1. As a mom also new to the medically fragle baby world, I have found that immune supressed and comprimised babies have a difficult time recovering with just one course of antibiotic. Kamryn is on her 2nd round of the same antibiotic for ear infections. The antibiotic was working, but not as it would in a child who’s immune system is strong. In saying that one course may not be enough help her little body fight off whatever it is she has. My concern with Kamryn is that if given multiple different antibiotics, will one work for her when she really needs to fight something more cuastic. So we stuck with the same one and put her on another 10 days worth. She also has a drop that goes into her ear that numbs it for pain. It’s called Antipyrine and Benzocaine Otic Solution USP. It does wonders for those late night, early morning fussy ear ache baby times.

  2. Err, is this baby couching the whole family or did you use to go running before she was born?.
    Thought you had discarded an ear infection…. Poor baby, ear pain is terrible.
    Hehe, love that song in ” the sound of music”. Actually it’s one of my favorite movies …
    Xoxo πŸ™‚

  3. HI TO ALL OF YOU GUYS. LOVED ALL THE PICTURES. LOVING THE PICTURES OF WILLIAM RUNNING WITH NORA, AND ALSO WITHOUT NORA IN THE STROLLER. I CAN’T IMAGINE WHAT PEOPLE THOUGHT IF THEY DID NOTICE AN EMPTY STROLLER!!!! LOVE THE PICTURE OF NORA AND DADDY. ALSO LOVE THE PICTURE OF THE “BIG KIDS” AND NORA. ALEISA I AM SURE THAT EVERYONE FEELS LIKE I DO. I THINK THAT YOU DO A FANTASTIC JOB SENDING OUT YOUR BLOGS. DON’T THINK FOR A MINUTE THAT YOU HAVE TO APOLOGIZE TO ANYONE. WITH EVERYONE AT HOME FOR THE SUMMER, WHY NOT SEND A BLOG ONCE OR TWICE A WEEK JUST TO KEEP US ALL UPDATED. I AM SURE EVERYONE WOULD UNDERSTAND. I LOVE YOU GUYS AND I PRAY THAT LITTLE NORA WILL GET BACK FEELING LIKE HERSELF (HAPPY BABY) REAL FAST. PRAYING FOR ALL OF YOU GUYS. HAVE A GREAT DAY. LOVE AND PRAYERS!!!!!

  4. Very sweet post. So much fun and love you all are able to share with each other even with sad baby. It was fantastic seeing you all, except Nora, Sunday. Hope the medicine helps!!! xoxoxo

  5. Your family is full of love! I really enjoyed seeing William and Nora running and we can SO relate to the empty stroller stories! I hope Nora is back to feeling better very soon and I am praying for her and for you. Congratulations on running for Harrison! What a great cause too. And, if you felt bad running you certainly didn’t look it!! πŸ™‚

  6. It was great meeting you at the race! I’m so glad I did it and think I’d like to do more 5K’s in the future! You had a great time too! :). I hope you have figured out the cause of Nora’s ailments. Poor girl, poor Mommy! Hope you’re having a good Summer break so far–I feel ya on the having no time thing!

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