Pictures from yesterday (hour developing wasn’t available at Photo Hut *wink*):
Visiting other lands (the front room). Very interesting!!
Pictures from today:
Good morning, good milkies!
Wait a minute.......
Is that baff water I hear running????
I like this!!!!!!
Baffs make me sleepy (except for at night when I'm SUPPOSED to be sleeping)
In the TOASTER after baff 2
Thank goodness for TOASTERS!!!!
We had our visit with Nora’s cardiologist this morning. It was strange being there without Nornor! We brought along a medical advocate who has become a good friend of William’s. Today was the first time I had the pleasure of meeting Mike. He was there to hear what the cardiologist had to say and would then be able to interpret the medical lingo in laymen’s terms if need be, as well as offer his opinion. In addition to Mike’s medical knowledge he also offers an amazing faith perspective. I feel so blessed by people like Mike that God has placed in our lives.
Without going into all the particulars, there still was not a concise plan of action by the end of the meeting. Basically the decision is ours. Our cardiologist thinks surgery is a bad idea, another doctor thinks it would be of benefit. With that said, Dr. H made it very clear that whatever we decided to do, he would respect that decision and continue to care for Nora as her cardiologist.
I left with the same feeling of uncertainty that I arrived with. I think I speak the same for William. In my silent prayers I pleaded with God to make the answer to this decision glaringly obvious, “Write it in the sky! Emblazon it across a billboard with arrows pointing at us!” Not 10 minutes after I had that one-sided conversation, I picked up my “Jesus Calling” devotional.
Um. Wow.
So the conversation wasn’t so one-sided after all. I got a very pertinent response that seems pretty glaringly obvious to me. Wouldn’t you say??
So many of the pages in this awesome, awesome book deal with worry, gratitude, forgiveness, a whole spectrum of topics, but today, November 30th it touches on THIS VERY TOPIC of “fixing things”. I still don’t feel like I can make a set in stone decision right then and there after having read that, but not because I don’t believe it. I think God will continue to lead us down the path that is right for Nora. It will be so obvious that we couldn’t imagine doing otherwise. I trust and know this.
The LORD says, “I will guide you along the best pathway for your life.
I will advise you and watch over you.
(Psalm 32:8 NLT)
iwillcarryyou 
Thank you! That was tremendously helpful for me today as one of my other children is having medical problems that I am trying to fix every day and making myself crazy. His problems are actually taking more of my time and thoughts than my little Mary who has Trisomy 21. Thank God she is more stabilized now so I can give him the attention he needs. I will pray that the path for Nora regarding her heart becomes very clear. Having different surgeons giving different opinions would be very hard for me. It was very clear with Mary when they had to do her heart surgery. They wanted to wait longer for her to gain more weight but she had to have it done around Christmas 4 years ago. The holiday time always brings up a lot of memories for me. I remember ordering her Christmas stocking from Lands End and having them put her name on it and not knowing if she was going to live to use it. Almost makes me cry as I write this. I absolutely love reading everyone of your blogs and you lift up my mood each time. I really need to turn to God more!
ALEISA, I REALLY THINK WHEN THE RIGHT TIME COMES, GOD WILL MAKE IT CLEAR TO YOU AND WILLIAM. OUR SON GOT ME A SMALL TURTLE TO SIT ON MY DESK HERE AT HOME, AND IT SAYS “ONE DAY AT A TIME”. WE, AS PEOPLE, (I KNOW I AM GUILTY OF THIS) WANT THINGS TO HAPPEN RIGHT NOW. THEN I READ MY LITTLE TURTLE MESSAGE, AND THINK THANK YOU GOD I KNOW IT WILL IT HAPPEN WHEN IT IS SUPPOSE TO. I LOVE NORA’S LITTLE CHUBBY ARMS, SHE IS SO ADORABLE. SHE WAS REALLY TRYING TO FIGURE OUT WHAT THE BRANCHES ON THAT TREE IN YOU FRONT ROOM WAS. IT SEEM TO AMAZE HER. I WAS JUST WONDERING, DID MIKE HAVE AN OPINION OF WHAT HE THOUGHT ABOUT WHAT THE DOCTORS HAD TO SAY? JUST WONDERING, SINCE HE IS EXPERIENCED IN THAT FIELD.
I KNOW YOU ALL HAVE TO BE TIRED TONIGHT, AND I PRAY THAT YOU GUYS GET A GOOD NIGHT’S SLEEP. I AM GOING TO HEAD TO BED, SO UNTIL TOMORROW, GOOD NIGHT AND GOD BLESS. LOVE YOU ALL.
Wow indeed. What a great answer for all of us. And what a super incredible baby 🙂
That definitely was an answer as I see it. I love the way little Nora sticks her little tongue out as if she is deep in thought. That is whether it is baffs; milkies; new toys to look at; or whatever. She also has a little smile behind her tongue that shows up in her face. She is such a sweetie. I will keep you in prayer as you await for a clear cut answer to decisions. God be with all of you.
More than Amazing! (Lincoln Brewster!) I always create our Christmas plays at our church and each year, the “anchor”/ending song just jumps out at me. Usually this happens after I’ve got the program pretty well designed! Then I “hear it”- and say, “Yeaaaaah!! That’s it!!” He IS more than amazing. How “rooted” you must feel, grounded in His promise when you read that devotion. I hope it gives you some of the “calm” you deserve, knowing that He is with you all the time.
< Love and hugs,
Lisa