Today was a day of mixed emotions, not in any particular order which diverged into a bit of a roller coaster ride. Nothing extreme with loops and turns, thank God.
Gavin and Greta had a nice day away from home with friends. It was nice to spend a day (my birthday, no less!) without refereeing their teasing and fighting. I guess that’s all part of being siblings, but it has certainly gotten old a long time ago! I’m running out of ideas to keep them entertained and occupied when they are here. A trip off to the zoo or the library was something I used to totally take for granted.
Other high points were the surprise visits from friends and the planned visit from my Muthr. (That afforded the luxury of more than 30 seconds in the shower! Aaahhh.) And a long talk with Karen Santorum who is always such an insightful pleasure to talk with.
The dip of the day was the phone call from Children’s Hospital calling with the results from Nora’s chest x-ray. I’m getting pretty good at deciphering what the news is going to be based on the caller’s tone of voice. And no matter how hard I try to change the outcome of what they are about to say with a chipper and upbeat tone of voice in response, the bad news comes barreling forth anyway. This news wasn’t anything that knocked me down to my knees, but not exactly what I wanted to hear either, mainly in part because I’m not 100% clear on what it all means. Based on the X-rays from early May compared to the ones taken this past Tuesday there is an indication that Nora has “chronic lung disease”. There were some areas of opacity in the X-rays that show this to be the case. It could be that Nora is aspirating her formula into her lungs which is causing the problem. The swallow study will answer that question, and the sleep study will offer some more answers. Both of those are scheduled for July. If she is aspirating, they will try to thicken her formula to see if that helps any. The good news, I guess is that maybe the aspiration is the answer to our question of why she desats. If we can fix the aspiration, maybe that in turn would fix the desats? This is just me guessing because I really don’t know. (!!!??)
After that phone call I was feeling a little down and out of sorts, audibly reminding myself that IN GOD I TRUST, IN GOD I TRUST, IN GOD I TRUST. He will never let go. In my quiet moment of prayer I was wishing I had someone there with me in addition to God’s presence. That was of course when the doorbell rang. God sent my friend Jamie as the perfect remedy for my dour mood right when I needed her. There are way too many instances of the right people at the right time lately for any of it to be coincidence. Makes me teary to think about it.
As the day draws to a close I’m so thankful for God’s grace and mercy, my hubzbind, my kids, my family and friends and for everyone out there praying for this sweet bundle of love.
“Do not be anxious about anything,but in everything,by prayer and petition,with thanksgiving,present your requests to God. And the peace of God, which transcends all understanding,will guard your hearts and your minds in Christ Jesus.” (Philippians 4:6-7 NIV)
We declare God’s wisdom, a mystery that has been hidden and that God destined for our glory before time began. None of the rulers of this age understood it, for if they had, they would not have crucified the Lord of glory. However, as it is written:
“What no eye has seen,
what no ear has heard,
and what no human mind has conceived”—
the things God has prepared for those who love him—
(1 Corinthians 2:7-9 NIV)