Nora – 36 Days Old

Today was a day of great adventure! Nora went to “the beach” thanks to a friend of ours who brought “the ocean” (a bag of sand and a bottle of salt water) back from a recent vacation. Decked out in her fancy monkey bikini Nora enjoyed a delicious milkies cocktail on the balmy shoreline. She accidentally lost her bikini bottoms on her way out to catch some waves. Terribly embarrassing, to say the least!!! The ocean was a little chilly for her liking so a soak in her “lukewarm tub” was in order afterward. (Babies don’t care much for hot tubs.)

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I’m so thankful for our ability to laugh even throughout some of our darkest days and moments. God gave us the ability to laugh and smile — what a cool gift! There is great truth in the saying about laughter being the best medicine. I love laughing, I love making people laugh and I’m drawn to people with a great sense of humor. That is one of the many things that attracted me to my sweet husband. His sense of humor is top notch! The medicinal properties of laughter are the infrastructure of our relationship with one another and that of our extended families. It’s safe to say that William and I both originated from a long line of silliness. I love to see it shine forth from our children, even tiny little Nora who we’ve embodied with a funny personality all of her own.

For instance, look what she decided to wear to breakfast this morning.

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As if we’ve got some kind of contest going!! So, whatever!! *wink* (You can “friend” her in the Praying For Nora Rose group on facebook, she wants me to mention.)

Silliness aside, we are incredibly blessed to have Nora in our family – I can’t say that ENOUGH. I had an amazing phone conversation with a woman whose little girl also has trisomy 18. Her little girl just turned FOUR! It was a pleasure and an honor to talk with her today. I have a renewed hope as it pertains to Nora — that she too will defy everything that has been suggested about children with this condition. Every life is precious, meaningful and worth fighting for, children with extra chromosomes included!!!

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“The King will reply, ‘Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me.’ (Matthew 25:40 NIV)

31 thoughts on “Nora – 36 Days Old

  1. This post just made my whole day! I love it!!! You don’t know me but I have stumbled upon your blog like so many others. Your story, the positive attitude you have and your beautiful baby girl has inspired me more than you could ever know…God Bless!!

  2. I have been following your blog for a while (for some reson never left a comment.) I am blessed that Nora has brought me back to the lord. She indeed is here fulfilling her mission in more ways than one. I find myself looking for updates daily. She’s ADORABLE!!! Hugs and kisses for sweet Nora.

  3. Long time reader, first time commenter. I love the beach set up! That is just too cute! Thoughts and prayers being sent your way. I love reading about Nora and seeing her adorable pictures!

  4. Love, Love, Love the Nora’s beach picture! I don’t think I’ve ever seen anything so cute as that! Continued prayers for Nora and her family!

  5. What a great little video and what a great and thoughtful friend you have to do something so special! Thanks for sharing and for putting a smile on my face to start my day:)

  6. I just found your blog from a friend’s posting on Facebook. I will pray for your sweet family. It was such a joy to watch the little video of “Nora going to the beach”. Precious memories!!!!:) What a great idea your sweet friend had!!! It put a smile on my face this morning and yes indeed, God is good and faithful…yes, indeed every life is precious to Him…you are travelling this journey with many praying for your family….continue to find laughter amidst some of the most difficult valleys…James 1:12 says this: Blessed is the one who perseveres under trial because, having stood the test, that person will receive the crown of life that the Lord has promised to those who love him. May you find peace and comfort and rest in His Word….Love and prayers in Him, Erin Provenzano

  7. Love this post, agree whole heartedly about the silliness that runs amuck in your family, and your take on laughter. You are one of FEW that can make me fall out of my chair laughing, and knowing Nora has inherited this trait, makes me love her ALL the more. Also glad that others who have T18 children are reaching out and letting the world know and see how precious y’alls kids are :)!

  8. Totally made my day. Thanks Nora for being the sweet, silly, precious gift that you are! So glad you were able to hit the beach and catch some waves. Love your outfits, rock on girlfriend 🙂

  9. So sweet. What a fun day you two had. Your strength and laughter through the tears amazes me. I love hearing about sweet Nora and pray that I will read about her adventures for many, many years.

  10. Aleisa, you never cease to amaze me with your cleverness and creativity! How precious and hilarious at the same time! Thank you for blessing us all by sharing precious Nora Rose! Please give her a kiss for me.

  11. How thoughtful of your friend to being the beach to Nora! That is so great that she gets to hang out in her bikini by the sand and water – SO ADORABLE!

  12. Aleisa, this just made my day! Loved seeing you, Greta, and Nora having fun at the beach. Funny to see that Nora had a very real moment when she lost her bikini bottom; however, I especially loved the way she just continued on without it–like she has no cares in the world!! I am still smiling from ear to ear just thinking about the fun I witnessed via your video. God Bless you and yours.

  13. Nora is one lucky little girl that she gets to have a family like you. I really enjoyed watching your video and how much of LIFE you are giving to Nora. Thank you for sharing with all of us!

  14. oh my goodness!!!! How stinkin’ cute are these pictures!!! I’m going to Clearwater, FL Friday, can I bring you the Gulf Ocean? 🙂

  15. I have watched the video 3 times! I love it! You are so right about laughter and silliness, as you know it prevails in our family! Some of the goofiest and most laughable moments of my life have been with you! Little Nora has been born into love, laughter and downright silliness!

  16. TODAY’S PICTURES AND VIDEO WAS BEYOND A BLESSING. YOU HAVE SUCH A GOOD FRIEND THAT BROUGHT THE BEACH BACK HOME FOR NORA. WHO KNEW SHE WOULD BE PUTTING HER BEAUTIFUL LITTLE TOES IN THE OCEAN WATER AND THE BEACH SAND. SHE LOOKS ABSOLUTELY BEAUTIFUL IN HER LITTLE BIKINI. SO CUTE WHEN THE BOTTOMS FELL OFF. IT WAS SO GOOD TO SEE GRETA ENJOYING HER LITTLE SISTER. LOVED THE LAUGHTER. I COULD JUST FEEL THE LOVE BOTH OF YOU WERE SHOWING NORA. SOME DAY SHE ALSO WILL BE LAUGHING AT THAT VIDEO. LOVE HER FACEBOOK FRIEND SHIRT. YOU ALWAYS COME UP WITH SUCH ADORABLE PICTURES. GRETA YOU ARE SUCH A BEAUTIFUL BIG SISTER. THANK YOU SO MUCH FOR SHARING, I AM STILL SMILING WHILE TYPING THIS. YOUR BLOGS MAKE MY DAYS SO MUCH BRIGHTER. GOD HAS BLESSED NORA WITH THE BEST OF BEST FAMILY. MY HUSBAND AND OUR 42 YEAR OLD SON ALSO LOVES THE VIDEOS. I LOVE YOUR FAMILY. GOD BLESS.

  17. I’ve been reading your journal here since Nora was born, and I love that little girl from afar. I can see her growing larger and her “pinkness” seems improved. Way to go Nora! Sending love to you all,
    samm

  18. LOVE IT!!! Those glasses are the best!!!!! And with her loosing her bottoms….maybe she wants to be a nudist when she grows up….really, you shouldn’t stifle her independence. 🙂

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