It’s Nora’s ONE WEEK birthday today!! She is such a part of our family, such a treasured little being. She is celebrating right now by sleeping on my chest all curled up in a little ball. We love the rice crispie treats and brownies that were made in her honor today!
Today we went to Nora’s first pediatrician appointment. Ordinarily I am not crazy about the medical visits. I’m much more at ease being in the comfort of our home where we can focus on living in the present moment instead of worrying about what the future holds. Of course I want to do anything and everything I can to ensure Nora’s well-being, but while everything is going well at home, I’d just assume stay there basking in the sweetness.
Here is Nora on her way out the door this morning:
Let me first start off by saying that our first experience with a pediatrician just after Nora was born while we were still in the hospital did not go over well at all. Perhaps it was his inexperience with trisomy 18, fear of the unknown? I’m not sure what the problem was, but I am sure that no parent, ourselves included, appreciate being offered condolences on their living, breathing child that is very much alive! I won’t bother you with the specifics, other than to say the short visit was very upsetting.
The next day our sweet nurse Kate arranged for another pediatrician to pay us a visit. Dr. Reuter completely made up for the former pediatrician’s perceived lack of compassion. Here was a man who lovingly took my newborn daughter into his grand, gentle hands, held her close and softly stroked her tiny head full of dark hair. To this man, Nora was a baby, not a diagnosis. Instead of taking Nora into the adjoining room to examine her, he asked if he could examine her right there on the bed, that way William and I could both be present. My heart swelled with emotion and gratitude as Dr. Reuter proceeded to get down on his knees to get a better look at this sweetest of babies. He understood our concerns and took the time to answer our questions. He wanted to know all about our journey to that point with genuine interest and compassion. The comfort and love that emanated from this man was just what we needed. He was a true Godsend. As he left our room, we both got emotional, thanking God for sending Dr. Reuter right when we needed him.
The pediatrician we saw today, Dr. Bolling came highly recommended by Dr. Reuter, and rightfully so! He, too was another gentle, compassionate person and we are grateful to have Nora under his expert care. My reluctance on being there was quickly dashed after just a few minutes of conversation with Dr. Bolling. Nora’s PKU tests all came back normal, her weight is consistent with her hospital release weight. Four pounds, ten ounces!! And her heart is doing its job for the time being. We are, however, scheduling to have an echocardiogram done within the next few weeks to see exactly what her heart defect is. Right now Tetralogy of Fallot is suspected. No bad news, no pressure into making any immediate decisions, and hopefully no germs picked up. It was a very good visit!
Here are a couple more pictures of our little ONE WEEK OLD from today:
He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. (2 Corinthians 1:4 NLT)
Sorry for taking so long to update!