Day 31

Today was the first day I was able to look at the ultrasound pictures that were taken at the beginning of January. After the diagnosis I’d stuffed them all into an envelope and “never wanted to look at them again”. Today I looked at them in a whole new light. They were no longer just “Baby with a chromosomal disorder”. They were pictures of my sweet Nora — my precious baby girl with the cutest little nose and mouth. She has a perfectly round little head just like all of her siblings did.


Saturday we go for the 4D ultrasound, which we’ll go to as a family. Gavin and Greta are excited to see their little sister. They realize she might not be with us long, but they love her none the less. They hug my belly and say goodbye to her before heading off to the bus stop, and pat my belly “hello” as soon as they get home. It’s sweet to have Nora included as a part of the family.

This sweet little girl who responds to the sound of my voice. I want to hold onto her forever and never let her go.

9 thoughts on “Day 31

  1. No matter what happens, you WILL hold onto her forever! “As long as you’re living, your baby she’ll be”! That sure is a sweet little profile, isn’t it??!! Love her. Love you.

  2. I am crying just reading these words! Give my little G&G and baby Nora a huge hug and know that your in my prayers all the time. Love you my dear Friend!

  3. She is absolutely perfect! She’s gorgeous… I hope the family truly enjoys the 4D ultra sound. Too bad Nora can’t see out at all those that lover her and await her arrival. God bless you all!

  4. rick santoram (spelling?) has a child with trisomy 18.. she is now three years old i believe…never know what God has in store for Nora..

  5. I found your blog from a comment you left on another one today. Please know that there is an extensive online support group if you’d like to join us. On facebook there is a VERY active group called trisomy 18 mommies (which also takes in other trisomies such as 13 and other rare ones). We are there for each other in the good and bad and uncertain times. You’re right, your baby is a wonderful gift from God. Please let us know if we can help you. My son is 20 months old on Monday, and is the light of our family. My prayers are with you. Rebekah

  6. Love….it is a word we use so casually each day….but do we really know the magnitude of what the word LOVE means? I guess to many it has a simple meaning, “I love my spouse”, “I love my kids”, I love my new haircut”, “I love my job”, “I love my car”….etc. etc. When you use the word love when talking about your sweet Nora, it somehow takes a new meaning. The depths are deeper than the deepest sea, many cannot fathom the infinite amounts of love you carry in your heart and soul for her. It is the same love that you share with your children and husband but I believe (as a mother) it goes beyond where any other human can see. It is beautiful and it makes me happy to know that that kind of love exists in this world.

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