His Way is Perfect

From Jesus Calling

I am involved in each moment of your life. I have carefully mapped out every inch of your journey through this day, even though much of it may feel haphazard. Because the world is in a fallen condition, things always seem to be unraveling around the edges. Expect to find trouble in this day. At the same time, trust that My way is perfect, even in the midst of such messy imperfection.

Stay conscious of Me as you go through this day, remembering that I never leave your side. Let the Holy Spirit guide you step by step, protecting you from unnecessary trials and equipping you to get through whatever must be endured. As you trudge through the sludge of this fallen world, keep your mind in heavenly places with Me. Thus the Light of My Presence shines on you, giving you Peace and Joy that circumstances cannot touch.

As for God, his way is perfect; the word of the Lord is flawless. He is a shield for all who take refuge in him.
—Psalm 18:30

“For I am the Lord, your God, who takes hold of your right hand and says to you, Do not fear; I will help you.”
—Isaiah 41:13

Update from June 3:

It is with great, great sorrow that I write. Nora passed on into heaven in the very early hours of Tuesday morning, June 3rd. She was surrounded by family and friends who love her — most who were present at her birth, including her Labor & Delivery nurse. I laid next to her, her Daddy stood on her other side. We sang songs to her, whistled to her and stroked her soft hair as she was born into heaven. God has in fact answered our prayers for healing. She is completely restored, made new, and freed from all of the tubes, wires, tape, alarms and monitors. We are so grateful that God chose us to be her parents for the beautiful two years she was on loan to us. She defied all odds and statistics because so many people loved her and prayed for her. She touched thousands of lives in a way I never could hope to do if I lived to be 120. What an amazing Lady Baby, what a gift. Please pray for us as we seemingly grasp in vain at this new “normal”.

Hospital – Day 15

This is the day The Lord has made, let us rejoice and be glad in it.
(Psalm 118:24 NIV)

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The ultrasound revealed that the fluid mass is still there on Nora’s lung. It hasn’t gotten any bigger, so that’s the good news. They know to keep an eye on it.

Right now the “Trouble du Jour” is bright red blood draining from her g-tube along with some other colored fluid which had been the norm, minus the blood. Not sure what to make of it. Earlier someone came in from surgery to assess. The surgeon didn’t seem to be too alarmed by the blood, yes, it’s a little unusual, but said to call her back if it got worse. If see blood where I’m not used to seeing blood and it doesn’t seem to be stopping, I process that as “worse” … when maybe it’s not.

At any rate, I have to go to bed. Thankful I got to go to church this morning and spend some time at home with our Kelly and the kids. Just wish I had more energy. Goodnight and thank you for your prayers!!!!!