I guess we’ve been in here 2 weeks now according to my post titles. Who knew?
Nora had a decent night last night and a good day today. She’s still struggling with her gag reflex’s terrible aversion to tubes, but overall it was a nice peaceful day.
We opened the blinds this morning and let the sun rain down on her. She really got a kick out of it!
Nora slept for most of the day, but we did get a few more smiles from her. I can’t even stand how sweet that is to see that little bit of joy radiating from behind all of the tape and tubes. She is beyond precious.
Tomorrow they will be doing an ultrasound of the fluid mass that was discovered on her left lung during the CT scan. We need prayers that it has shrunk, or reveals itself as obviously harmless. I will be so bold as to pray that it has altogether DISAPPEARED. We are also praying that her NG tube can be removed. Any relief she can get in her poor tiny throat would probably be much appreciated!
Little heart-shaped droplet of blood on Nora’s arterial line dressing that occurred during her blood transfusion this afternoon. Someone else’s blood that was donated to heal my child. Yes, that is love. Thank you!
“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”
(John 16:33)
iwillcarryyou 
Your testimony is priceless. Thank you for sharing your Nora and your heart!
Love,
Lisa
Praying for this sweet, precious darling!
Many prayers that NO fluid is found and that darn NG can be removed. I can’t imagine how that must feel.
This just said you all over it and knowing you it may already be on your wall!! I just know the song is a PRAISE SONG AND OUR LITTLE ONE HAS HER HANDS OR FEET UP IN PRAISE!! LOVE AND PRAYERS ALICE
Alice Richter, First Steps Primary Evaluator/Developmental Interventionist
Small Hands Big Hopes Inc.
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Date: Sun, 1 Jun 2014 02:37:05 +0000 To: alice_richter@hotmail.com
I’ve been following you off and on since Nora’s birth via a friend’s reposts on Facebook. She is a tiny warrior and you are an inspiration and full of grace. God bless you and your sweet family!
Yes Nora is beyond precious; I’ll be praying bold with you; we just had a blood drive at our church; I’d like to think in some way, indirectly we were helping NorNor; sending love and continued prayers