It was a beautiful Memorial Day ~ perfect weather, happy baby. I don’t ask for much else!
Sweet morning sleepiness
The big kids were still in Cleveland (or on their way home), and Nora was with her nurse. This afforded me a treasured afternoon with my husband. We ate lunch in Eden Park and watched birds frantically bathing on the rocks between two lakes. The still shots don’t accurately portray the frenzied activity that was taking place, but still cute.
Just when we thought we were on a roll with Happy Baby, Crabby Gas Baby returned for much of the day.
An early morning walk at least put her back to sleep, but when she was awake she was unhappy. It may have been triggered by a bottle of prune juice that had accidentally exceeded its freshness. I only took the “Use By” date into consideration without noticing (until now) the tiny microprint which stated, “Discard 7-10 after opening.” Oops. Of course expired prune juice would be the likely culprit here, but my fears and worries start getting into a tangled knot in the back closets of my mind. I hate when she’s upset and hurting!!!
A late morning bath was soothing?
Trying to stay grounded, focused and optimistic, I glanced out the window. Of course. Of course. Of course.
Later in the afternoon I got some comic relief with my buddy boy at his orthodontist appointment. He doesn’t need to be seen until next summer! Phwew!
As the rest of the day unfolded Nora started feeling better. William and Gavin made it out to a Reds game with Nana & Papa!
Today isn’t starting out so great. The moment Nora woke up she was unhappy. After our morning run (that appeased her for a little bit) I noticed she felt a little warm. I took her temperature and lo and behold she has a temperature of 101. She was obviously uncomfortable so I gave her some Tylenol. At that point I may as well have spun her around the living room by her feet and covered every square inch with puke. I had to remove couch cushions during that clean up process.
I am incredibly frustrated. As if her trisomy 18 diagnosis isn’t enough in and of itself we are constantly being bombarded with one setback after another. It’s hard to sit here and “play hopscotch in the driveway” when there’s a big funnel cloud about to come tearing through. I’m so filled with anger and self-pity today. I just want things to be KIND OF “normal” with a happy, healthy baby. It’s so stupid for me to sit here and ask, “Why why why.” I KNOW why, and the reason is astonishingly beautiful. This is just REALLY hard on days like this.
God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging. There is a river whose streams make glad the city of God, the holy place where the Most High dwells. God is within her, she will not fall; God will help her at break of day. Nations are in uproar, kingdoms fall; he lifts his voice, the earth melts. The Lord Almighty is with us; the God of Jacob is our fortress. Come and see what the Lord has done, the desolations he has brought on the earth. He makes wars cease to the ends of the earth. He breaks the bow and shatters the spear; he burns the shields with fire. He says, “Be still, and know that I am God; I will be exalted among the nations, I will be exalted in the earth.” The Lord Almighty is with us; the God of Jacob is our fortress.
(Psalm 46:1-11 NIV)