“I’ve been working on my thank you cards for all of my wonderful birthday presents! I still have a lot to go, but I’m getting them done little by little! I loved all the happy birthday wishes on Facebook and all of the sweet notes and cards and presents! I must be the most loved girl in the world!”
“Daddy and Gavin went to King’s Island because Gavin got a really, really, really good midterm report. Greta doesn’t get midterm reports yet, but if she did it would probably be really awesome too. Greta and Mommy went up the street to the Spring Carnival at the old school! This ride was a crazy belly tickler!!! I’m glad I didn’t go on that!”
“Here’s Mommy. Apparently I caused some troubles and worries this evening with my heart rate…”
Ohhhh Nora, Nora, Nornor!!! What are we going to do with you!!?? Yes, Nora’s heart rate was very high again this evening, at one point up to 207. The only change we’ve undergone is the switch in formula. She didn’t seem to be tolerating the Nutramigen very well, as she was puking each bottle up afterward – and continued belly pains which is what we were trying to get away from in the first place. After almost 5 days of trying, we opted to go back to the soy. For the most part she’s been able to keep the soy down.
Later this evening we put her in the bath. She did some extreme tooting and then proceeded to stink up the water. <:0 (Ack!!!!!) We eventually got everything and everyone all cleaned up and finally situated back downstairs. I received a phone call from a friend just prior to hooking Nora back up to the pulseox machine. She prayed over us, asking for wisdom, peace and relief from this situation, praising God for the sweet little noises Nora was making. Her numbers were registering in the 170s, oxygen sats in the mid-90s. After I hung up the phone Nora fussed for a couple of minutes and then suddenly it was if a switch had been flipped. Her night nurse had just arrived, so she witnessed it too. Nora became bright-eyed and squealy, checking her watch. Her heart rate dropped back down to the 150s/160s, sats in the high 90s! That was the lowest it had been all evening!! I, of course, attribute this to prayer and wonder if she had some GI distress that had suddenly been alleviated?!? Nora did have a dramatic puke episode a little bit after this, which of course brought everything back up, but after she recovered her numbers looked good again.
Recent 3:30 AM check with Nora’s nurse and her numbers are still within a stable range! PRAISE, PRAISE, PRAISE GOD!!!
These bumps in this already uncertain road can be so trying and so draining. I love this baby girl with every ounce of my being. It’s so hard not to try to control every little bit of this, to TRUST FULLY in God. I have to constantly remind myself of everything He has brought us though and from!!! I heard a great quote tonight: “The crazy thing about grace is that it meets you where you are and never leaves you where it found you.” I’m a far cry from that helpless, grieving heap on my bedroom floor back in January of 2012. None of this is a surprise to God. He planned this all out before the creation of the universe, as He did each of our journeys.
Don’t be afraid, for I am with you. Don’t be discouraged, for I am your God. I will strengthen you and help you. I will hold you up with my victorious right hand.
(Isaiah 41:10 NLT)
For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God— not by works, so that no one can boast. For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do.
(Ephesians 2:8-10 NIV)