Nora’s cardiology appointment went well. The findings of her echocardiogram showed no changes. Everything is still the same. Although I was hoping there was improvement, I’ll take this news. Our doctor still does not agree that surgery would be of benefit despite the second opinion we received. The waters are kind of murky for us on that subject. We’re still waiting on responses from two other hospitals. Hopefully their opinions will offer some clarity.
I’ve been up since 3 am, which is when William went to bed, only to have to wake up at 5 so we could be on the road by 6. Nora did not sleep for more than 15 minutes at a time and it looks like tonight is going to be another such night. I attempted to take a nap when we got home with my Mom here to watch Nora. Barking dogs, garbage trucks, leaf blowers, chain saws… Everything but a marching band the second I had the audacity to slip off to sleep! This was with my ambient rain playing on the ipod and the bathroom fan on. Not like I expected the world to pause while I took a nap, but come on!! So here I am delirious, probably rambling with a wide eyed baby who is about to start freaking out again. Good thing she’s really sweet and cute…
Earlier today:
Silly Greta
iwillcarryyou 
WOW!! I CAN’T BELIEVE THAT IS GRETA. WITHOUT THAT BIG BEAUTIFUL SMILE, AND THOSE GLASSES WITH THAT NOSE, I CANNOT TELL IT IS HER EVEN AFTER FINDING OUT IT IS. HA! HA! BET SHE IS ONE TO KEEP EVERYONE LAUGHING. LOVE THE VIDEO. NORA WAS SOFTLY TALKING TO YOU IN THAT ONE. HER SLEEPING MUST HAVE BEEN ON THE WAY TO THE DR. APPOINTMENT TODAY. SO GLAD EVERYTHING IS THE SAME, BUT I TOO WAS HOPING THERE HAD BEEN A BIG IMPROVEMENT. WELL HOPING THAT NORA FINALLY GETS SLEEPY AND MOMMY AND NORA GETS SOME SLEEP TONIGHT. GUESS I WILL WIND DOWN MYSELF AND GET SOME SLEEP. LOVE YOU ALL. GOOD NIGHT AND GOD BLESS.
Though this is my first time writing, I follow you blog daily and you are constantly on my mind. I’m writing now to see if you could post a small line about praying for my friend, Laura, and her infant son, Lee. He is facing more surgeries (already underwent 6) and after 1 his heart had stopped for 2 minutes. I posted a few more details on my blog: http://www.youngnotpowerless.com/2012/11/prayers-for-lee.html. If you could say anything at all I would be incredibly appreciative/humbled as I know you have so many readers and Lee can use all the prayers he can get. All our love to your beautiful family.
Fussy baby+bubbles= teeth coming through?
P.S.1: invest in a pair of ear plugs , they do the trick.
P.S.2: love Greta’s pic
Muaahh
Leis, here’s your prayer today. -Lord, Give her the amount of sleep she needs to enjoy and be present to the people she loves. Amen.
(I’ve prayed that one for myself when a little one kept me up during the night; it seemed to work). ❤