Nora had her echocardiogram and appointment with the cardiologist this morning and it went very well! We were so happy and excited that our nurse friend Linda M., who is now like family was able to stay with us throughout the appointment. She definitely has a soothing-effect on Nora!
It was determined that Nora is still not having any symptoms of congestive heart failure, maybe some slight retraction (ribs showing when inhaling), but that’s it. Surgery would not be of benefit to her still at this point because the VSD is not causing any issues, even with being on the sildenefil. Dr. Hirsch, our cardiologist said that she looks great! I love that Nora was so alert and talkative for all of the doctors! They seemed to be very fascinated with her! I feel that we are so blessed to have this amazing team of doctors who genuinely care for Nora. She is NORA, not trisomy 18, and they get that!
Nora has been such a happy smiley baby today. She smiled almost the whole way home.
And then of course later in the evening Nora was smiling for her beloved bath time. She wasn’t the only one smiling in the tub. How beautiful it was to be sharing that precious bath time with my sweet baby daughter with a rainbow glowing in the sky right outside the window!! It was the closest thing to heaven in that moment!
Beside the appointment this morning we had a lot of running around today! I had a doctor’s appointment of my own and then took Gavin to get fitted for his tux for his Aunt Em’s wedding in a few weeks!
We love to make each other laugh! I love that kid!
I’m so relieved today is over! I’m about to unwind with some Marley’s Mellow Mood and call it a night. Every little thing is gonna be alright! (Thanks, Will R!!!!!)
Great are the works of the Lord ;
they are pondered by all who delight in them. (Psalm 111:2 NIV)