First of all, thank you to everyone who came out to Chik-fil-a today and this evening! That was so awesome to see all of your pictures and to hear about the amazing turnout! We were able to make it up there around 7:30 this evening. We loved seeing our friends and neighbors and meeting new friends! Your love and support really mean so much!
Nora was really excited about getting out tonight and wanted to get spruced up for the occasion. She had a nice relaxing bath while “3 little birds” watched over her the entire time from a tree in the backyard!
It took a little while, but she finally decided on the perfect outfit:
Um... Let's try the pink and black ensemble, please.
Does this make my shoulders look big?
Here are some pictures from tonight at Chick-fil-a:
This stuff is no good. Do they have any milkies?
Mmmm.myah.mmuch better, please.
In other news, Nora is down to an 8th of a Liter of oxygen! I think she’s anxious to be done with all of these stinkin tubes. Last night she ripped one side of the tegaderm off of her little cheeky for Miss Pam!! (Sorry, Miss Pam!! Love, Nora) I put new tegaderm on this morning, but not before snapping a cute picture of her:
Terribly sweet cheeks or what!!??
Here Nora is just before bed time after her busy day. Someone doesn’t look very sleepy!
She’s busy thinking about all of her friends that love her. Thank you again for the huge turn out today! You are all awesome!!!
I thank my God every time I remember you. (Philippians 1:3 NIV)
iwillcarryyou 
Looks like she had a good time at the event. Nora, You looked fabulous darling!!! So happy about her oxygen levels. Keep it little girl!! Love you guys!
woops..
“keep it UP little girl”
she is sooooo sweet.. you are beautiful aleisa, inside and out. love love, silvy
SO glad that she is doing well on the less O2! What a sweet picture of her without her accessories (LOL) :))
Awesome news!!! I love the picture of the 3 birds!
I never thought of 3 birds in this way before. I think of Miss Nora everytime I hear Corinne Bailey Rae’s song, Put Your Records On. 1st two lines are, “Three little birds, sat on my window
And they told me, I don’t need to worry”
Prayers that you can continue to lower O2 levels to completely wean so we can see that precious face!
Michele
This blog makes me so happy and renews my faith in a new way every day. God bless all of you and Nora, you looked totally fab in that black and pink getup! Go fashion girl 🙂
We were there earlier in the day…it was great to see so many NPES friends supporting your precious family. 🙂 ❤
ahh… my heart is filled after reading… she’s so sweet. BLESSINGS on all of you.
love it…love her…love you! 🙂
P.S. Nora- those abs…you’ve been working out!
she is just so cute.. and growing so fast..
WHAT BEAUTIFUL PICTURES!!! NORA LOOK SOOOOOOOO CUTE IN HER LITTLE BLACK AND PINK OUTFIT. LOVE, LOVE, LOVE THE PICTURE OF PRECIOUS LITTLE NORA ROSE WITH NO TUBES. WOW, SHE IS DOING SO GOOD, BEFORE WE KNOW IT SHE WILL BE OFF THAT OXYGEN. PRAISE GOD! I AGREE WITH THE LADY ALEISA THAT SAID YOU ARE BEAUTIFUL. YOUR WHOLE FAMILY IS AMAZING AND SO FULL OF LOVE AND KINDNESS. THANK YOU SO MUCH FOR SHARING ALL THE PICTURES. SEEING PICTURES OF NORA EACH DAY IS A REMINDER WHAT A WONDERFUL GOD WE HAVE WATCHING OVER ALL OF US. I AM SO GLAD THE GET TOGETHER AT CHICK-FIL-A WENT REALLY GOOD. HOPE YOUR DAY IS GOING GOOD. LOVE AND PRAYERS SENT YOUR WAY.
I am so sorry that I could not make it, I wanted to meet Miss Nora and give her wonderful parents a big hug.So happy to see her progress,God is good!!
It is impossible not to love your little lady! Blessings be yours ALWAYS!
I just want you to know that you and your family are on our prayers and especially beautiful NORA.