Gavin & Greta were away on a play date, and William was at work. So Nana (my sweet Mom) came all the way over to accompany us to Nora’s appointment with the pediatrician this afternoon. (I’m not totally comfortable driving with no one sitting back with her to help her if need be.) I’m proud to report that we have a very big girl on our hands! Nora weighed in at 6 lbs. 14 ounces and she’s grown another inch!
She is now 20½ inches, which has almost landed her in the 5th percentile!! She’s still a little behind in other areas of the growth chart, but that is very normal for her! Dr. Bolling was extremely pleased to hear that we’ve been able to successfully decrease her oxygen flow without affecting her sats! We plan to bump it down to an 8th of a liter to see how she does with that.
Earlier in the day we took a walk up to the mailbox before it got too hot out. Nora was fussy and needed a change of scenery. That seemed to do the trick and she fell right asleep. Upon arriving back home, I brought her in her carrier seat into the living room. I didn’t want to disturb a sleeping baby!! She slept contentedly in there for awhile. Every so often I would peek in at her. At one point I peeked in, and this is what I saw:
Busted, Mommy!
She was just quietly looking around in there, as sweet as she could possibly be!
Nora is now sound asleep as I write this. “Decreased activity” is one of the side effects of her DTaP/Hib/IPV vaccine that she received today.
Nora's Nest
I’m not sure what she decided was worse–the shot or the Children’s Tylenol that they administered beforehand. She expressed great displeasure at the grape flavor. “You really ought to take this crap off the menu,” she said, “This stuff is NO good!!!” … Yet she drank the barium down at the swallow study like it was the best thing she’d ever had! (?)
Just a reminder – it’s Nora Rose Day at Chick-fil-a on Houston Rd. in Florence, KY June 21st, 11am – 8pm. If you mention Nora’s name BEFORE you order (dine in, carry out or drive thru) 15% of the sale will go toward the Nora Rose Fund. And because you’re wondering: the Nora Rose fund was set up by some dear neighbors to assist with any excessive medical bills that may come about. It is our hope that Nora will continue to do as well as she has been and that we won’t actually need to use this money for that purpose. Instead we would love to donate it all to a worthy organization(s) in celebration of Nora’s life! If you are unable to make it to Chick-fil-a, but you’d still like to contribute to the Nora Rose fund, you may do so at any Fifth Third Bank. Thank you so very much, Becky for coordinating Nora Rose Day at Chick-fil-a and to Ron & Darla for setting up the Nora Rose Fund! You’re awesome!
Please accept my blessing that is brought to you, because God has dealt graciously with me, and because I have enough.” Thus he urged him, and he took it. (Genesis 33:11 ESV)
iwillcarryyou 
That look from Nora in her seat? I’ve seen that from my sassy girls before…the eye roll and sigh are next!
Give her a big hug and sweet kisses from me. So happy with her report!!!
Woohoo , she ‘s beaten the 3 kg mark !!.
That’s the chubby girl I want!!.
At least here, the Barium tastes like strawberry. Maybe she likes strawberry and dislikes grape flavored Tylenol, Mommy.
She knows what she wants !!. 🙂
Love hearing such a good report. But not as happy as momma was I am sure. Keep up the good work. You are doing a great job. And so is Nora!! Growing like a weed.
Little Nora is a darling 🙂 Continue prayers for continued blessings in her health and healing. My family will be enjoying Chick-fil-A and supporting your cause. Blessings to you and your family.
Don’t worry, Nora–Brodie doesn’t like the grape Tylenol either! 🙂 You’re doing amazing, little one!!! We praise God for you–what a gift you have truly been to so many of us!
Wonder news!!! Thank you God!!!
I love you Nora! Those shots are awful, and tell your doctor to get some yummy bubble-gum flavored Tylenol. That’s what Mariana prefers, anyway.
Literally LOL at the ‘busted Mommy’ picture!! Love it!
So Nora will become the official Tyenol taste tester!!! Such good news that you got – she is really growing up so well. As usual – her pictures are darling and especially the one in the car seat in th back seaat. I think I heard her saying – Let’s get out of her mommy – time to get home. Blessings to all and thank God for all the good friends you have that help. Being from Indiana – won’t be able to enjoy the Chick=fi-lay. (spelling isn’t so good.)
Aaaaahhhhh!!! I need to dig through some pictures, because I have one of you giving that same look that Nora is giving in her carseat! (you are pointing the picture at the camera, i know you know what I’m talking about!) Love this!
I wish they had a Nora Rose day at the Chick-fil-A in Louisville!!!
i love that busted mommy face–so stinkin cute!! i am still saying hi and giving you mommy hugs even though my FB is down for a bit (kind of over people right now) much love!
Doing well, little poppet!
If you aren’t already, DO download and use the Trisomy 18-specific growth charts, and share them with Nora’s paediatrician and any other relevant medics – I rather suspect that she’s doing quite a bit better than 5th centile on those charts. 🙂
SUCH GREAT PICTURES AND NEWS. SOOOOOOOO HAPPY WITH THE WEIGHT GAIN AND THE LENGTH. SHE IS DOING GREAT. AS YOU KNOW, I LOVE THE BLOGS YOU SEND. DON’T THINK WE WILL MAKE IT TO CHICK-FIL-A, BUT WE WILL FIND A 5TH 3RD BANK. DOES IT HAVE TO BE IN KENTUCKY, OR CAN IT BE AT ANY 5TH 3RD? I SO LOVE THE PICTURE OF NORA WHERE SHE WOKE UP, AND IS LOOKING AS TO SAY “OK MOMMY, I AM AWAKE AND WHERE ARE YOU.” ALSO LOVE THE ONE OF NORA TAKEN FROM HIGH. THAT WAS SO NICE OF GRANDMA COMING TODAY TO GO TO THE DOCTOR WITH YOU AND NORA. I AM GOING TO BED A LITTLE EARLY TONIGHT, SO I WILL CHECK BACK IN TOMORROW. GOOD NIGHT AND GOD BLESS.
Hugs to the little sweetie and her mommy!! XOXO