Oh what a wonderful day! We’ve got ourselves a regular little Heavyweight here! Little Miss Six Pounds Five Ounces!!
The pulmonologist, Dr. Chini was wonderful and showed genuine concern for our little girl as a person – not just a diagnosis. As of yet we do not have any definitive answers as to why she was desatting relatively quickly when taken off of the oxygen. However, we were very pleasantly surprised and optimistic when Nora was able to stay at a reasonable saturation level today for the half hour that she was being monitored off of the oxygen flow!! They did dip down into the 70s a couple of times, but she was quickly able to bring it back up. I know that Nora reacts to her Mommy and Daddy’s voices and loving caresses, but it brought tears to my eyes to see a machine validate that. Any time we talked to her or stroked her head her oxygen levels would rise right up. How sweet it is to love this little girl and to know that she loves us right back.
In addition to the O2 monitoring Nora had a chest x-ray today (that she was NOT at all happy with!!), and is to have a sleep study and a swallow study done within the next few weeks. The sleep study involves an overnight stay and will monitor her breathing / oxygen while she sleeps. The swallow study will track the path of her milkies as she swallows to determine if she is aspirating any into her lungs. She will also have some blood work done to check the carbon dioxide levels in her blood (blood gas panel) and another test, which if I remember correctly is a renal test as it pertains to possible hypertension?
I’m so relieved to have left there today without any bad news!! God hears our prayers loud and clear. I give thanks and praise!!!!!!!!
Nora celebrated her 7 week birthday today with a warm relaxing bath when we got home and excessive snuggles with Mommy. Here she is in a pretty new party dress!
On another note, I want to ask for continued prayer for the Mummert family on their journey after the loss of their little Harrison, who had trisomy 18 as well. While our stories had different outcomes, they are alike in that our children are working together to bring so many people closer and into a relationship with God. One from heaven and one on earth, making sure they have all their bases covered! If you haven’t already, I encourage you to read their story and daily updates at www.harrisonjamesmummert.com. I especially enjoyed the photos from today – a beautiful celebration of Harrison’s tiny but mighty little life. God bless you, James and Emily!
Through the praise of children and infants
you have established a stronghold against your enemies,
to silence the foe and the avenger.
(Psalm 8:2 NIV)